Duchenne Muscular Dystrophy (DMD) is a progressive inherited disease that affects the muscles and causes functional limitations to varying degrees. It is vital to start physiotherapy follow-ups immediately after diagnosis. Patients with DMD are among the most vulnerable groups who have problems in accessing physiotherapy services during the COVID-19 pandemic. The aim of the study was to investigate the effects of the telerehabilitation program developed to protect the physical health of patients with DMD and not to interrupt their follow-up.
Forty two patients with DMD were included in the study. 30 of them were ambulant in group 1, and 12 were non-ambulant in group 2. Physiotherapy assessments were performed blindly before the program started. According to the functional levels of the individuals, 2 groups were formed. 9 physiotherapists applied the tele-rehabilitation program for 24 session (3 days in a week).
Study Type
INTERVENTIONAL
Allocation
NON_RANDOMIZED
Purpose
PREVENTION
Masking
NONE
Enrollment
43
The 8 week exercise program with telerehabilitation
Karadeniz Technical University
Trabzon, Ortahisar, Turkey (Türkiye)
Functional level
Brooke Function Classification System
Time frame: Before the intervention, up to one month
Socio-demographics
gender, body weight, height
Time frame: Before the intervention, up to one month
Walking test (Before intervention)
The distance of 10 m was determined in a suitable indoor environment.
Time frame: Before the intervention, up to one month.
Walking test (After intervention)
The distance of 10 m was determined in a suitable indoor environment.
Time frame: After the intervention, average two weeks.
Time to stand up from the supine position (Before intervention)
The time to stand up from the supine position was recorded.
Time frame: Before the intervention, up to one month.
Time to stand up from the supine position (After intervention)
The time to stand up from the supine position was recorded.
Time frame: After the intervention, average two weeks.
Modified upper extremity performance test (Before intervention)
Flexion the shoulder to 90 degrees, flexion the shoulder above 90 degrees (above eye level), abduction of the shoulder 90 degrees, abduction of the shoulder above 90 degrees, doing the same movements with weight, bringing the empty glass to the mouth in a sitting position, bringing the full glass to the mouth
Time frame: Before the intervention, up to one month.
Modified upper extremity performance test (After intervention)
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Flexion the shoulder to 90 degrees, flexion the shoulder above 90 degrees (above eye level), abduction of the shoulder 90 degrees, abduction of the shoulder above 90 degrees, doing the same movements with weight, bringing the empty glass to the mouth in a sitting position, bringing the full glass to the mouth
Time frame: After the intervention, average two weeks.
Endurance (Before intervention)
The number of knee extensions and elbow flexions they can do in sitting position in 30 seconds
Time frame: Before the intervention, up to one month.
Endurance (After intervention)
The number of knee extensions and elbow flexions they can do in sitting position in 30 seconds
Time frame: After the intervention, average two weeks.
Pulmonary Dysfunction Test (Before intervention)
Value when the patient counts audibly in a single expiration after maximum inspiratory effort
Time frame: Before the intervention, up to one month.
Pulmonary Dysfunction Test (After intervention)
Value when the patient counts audibly in a single expiration after maximum inspiratory effort
Time frame: After the intervention, average two weeks.
Patient Satisfaction Survey
General satisfaction, internet/connection, physiotherapist's guidance, timing, level of knowledge, reassurance, comfort, knowledge/advice, level of satisfaction with information clarity
Time frame: After the intervention average two weeks