The aim of this pilot study is to test the benefit of behavior therapy-oriented, method-integrated psychotherapy in an outpatient group setting in patients with narcolepsy type 1. Therefore we collect and evaluate initial data on its effectiveness on the disease in terms of specific symptomatology, emotion regulation, health-related quality of life, and disease processing/acceptance.
Study Type
INTERVENTIONAL
Allocation
NA
Purpose
TREATMENT
Masking
NONE
Enrollment
10
Additional group psychotherapy for patients with narcolepsy type 1 with standard medication
Clinic for Psychosomatic Medicine, Cantonal Hospital St.Gallen
Sankt Gallen, Switzerland
Fatigue (Severity)
German version of the questionnaire "Fatigue Severity Scale" (FSS; Valko et al., 2008)
Time frame: Week 0-24
Daytime sleepiness
German version of the questionnaire "Epworth Sleepiness Scale" (ESS; Johns, 1991)
Time frame: Week 0, Week 6, Week 12, Week 24
Sleep quality
German version of the questionnaire "Pittsburgh Sleep Quality Index" (PSQI; Buysse et al., 2008)
Time frame: Week 0-24
Emotion regulation
German questionnaire "Fragebogen zur Erhebung der Emotionsregulation bei Erwachsenen" (FEEL-E; Grob et al., 2014)
Time frame: Week 0-24
Disease processing, acceptance & coping
German questionnaire "Freiburger Fragebogen zur Krankheitsverarbeitung" (FKV-LIS-SE; Muthny, 1989)
Time frame: Week 0, Week 6, Week 12, Week 24
Anxiety & depression
German version of the questionnaire "Hospital Anxiety and Depression Scale" (HADS; Herrmann et al., 1995; Herrmann-Lingen et al., 2011; Zigmond \& Snaith, 1983)
Time frame: Week 0, Week 6, Week 12, Week 24
Health-related quality of life (HRQOL)
German version of the questionnaire "Short Form 12 Health Survey" (SF-12; Morfeld et al., 2012)
Time frame: Week 0-24
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