Interstitial Lung Disease Research Unit Biobank

University of Kansas Medical Center1,000 enrolled

Overview

Establish a interstitial lung disease (ILD) registry and biorepository to lead towards a further understanding of the disease.

The University of Kansas ILD and Rare Lung Disease clinic sees hundreds of new patients per year. The investigators would like to leverage this resource to develop an Interstitial Lung Disease Research Unit (ILDRU) repository and database to help develop new methods for early diagnosis, uncover underlying genetic and environmental risk factors, as well as potential treatment targets in the broad range of interstitial lung diseases and rare lung diseases (RLD).

Study Type

OBSERVATIONAL

Enrollment

1,000

Conditions

Interstitial Lung Disease Sarcoidosis Idiopathic Pulmonary Fibrosis Pulmonary Fibrosis Hypersensitivity Pneumonitis

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: 1. The participant is a patient at TUKHS or has agreed to participate in a study approved by the KUMC Human Research Protection Program (HRPP) 2. The participant is being followed for the presence of autoimmune disease, ILD or other rare lung diseases at TUKHS. 3. The participant is ≥ 18 years of age. 4. The participant has signed an approved consent for this study (living patients only)

Locations (1)

The University of Kansas Medical Center

Kansas City, Kansas, United States

RECRUITING

Outcomes

Primary Outcomes

Collect clinically obtained data for patients with ILD, RLD and risk for ILD/RLD to support research.