This study will seek to improve communication with Spanish speaking families and patients with Cancer and Blood Disorders.
The Principal Investigator seeks to improve communication with Spanish speaking families with the following goals: 1) to increase patient and family sense of inclusion in the medical community, 2) to increase patient and family medical knowledge and understanding, 3) to improve patient adherence with critical medical regimens, and ultimately, 4) to increase equality of comprehensive medical care delivery across the continuum of care including physical and psychosocial domains.
Study Type
OBSERVATIONAL
Enrollment
20
Patient/parent dyads expressing interest will be interviewed by a bilingual Spanish certified provider via televideo with as needed interpreter support. Interviews will be audio recorded for review and translation purposes and then will be destroyed. Interview format will be supportive and information seeking only with reassurance that purpose is for care improvement and that all answers will be evaluated without association to patient name. Interviews will then be translated and reviewed by the PI for themes regarding perceived clinic successes and perceived clinic barriers in communication or care.
Children's Hospital Colorado
Aurora, Colorado, United States
RECRUITINGDetermine a baseline level of Spanish speaking patient satisfaction of care
Understand the patient experience using qualitative interview of Spanish speaking patients and families Determine satisfaction based on open-ended question with unsatisfied to satisfied as markers.
Time frame: 12 months
Determine a baseline level of Spanish Speaking family satisfaction of care
Understand the patient experience using qualitative interview of Spanish speaking patients and families Determine satisfaction based on open-ended question with unsatisfied to satisfied as markers.
Time frame: 12 months
Determine effects of language barrier on Spanish speaking patient needs
Understand the patient experience using qualitative interview of Spanish speaking patients and families. Determine satisfaction based on open-ended question to determine a list or pattern of common patient needs.
Time frame: 12 months
Determine the effect of language barrier on barriers to patient care
Understand the patient experience using qualitative interview of Spanish speaking patients and families. Determine satisfaction based on open-ended question to determine a list or pattern of common barriers to patient care.
Time frame: 12 months
Effect of language barrier on efficiency of access to care
Understand the patient experience using qualitative interview of Spanish speaking patients and families. Determine satisfaction based on open-ended question to determine how quickly patient was able to receive care.
Time frame: 12 months
Determine patient interest in home telemedicine support program
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Open-ended questions will be used to determine level of interest in a telemedicine support program.
Time frame: 12 months
Determine patient interest in home telemedicine support program after discharge
Open-ended questions will be used to determine level of interest in a telemedicine support program to be used after discharge from hospital.
Time frame: 12 months
Determine Spanish speaking patient interest in telemedical check-ins during intensive phases of therapy
Open-ended questions will be used to determine level of interest in a telemedical support during treatment.
Time frame: 12 months
Determine Spanish speaking patient interest in medication assistance during intensive phases of therapy
Open-ended questions will be used to determine level of interest in a telemedical medication support during therapy.
Time frame: 12 months
Determine Spanish speaking patient interest in medical check-ins during maintenance
Open-ended questions will be used to determine level of interest in a telemedical check-ins during maintenance.
Time frame: 12 months
Determine Spanish speaking patient interest in medication assistance during maintenance
Open-ended questions will be used to determine level of interest in a telemedical medication assistance during maintenance.
Time frame: 12 months