Stroke is one of the leading causes of disability globally. Stroke survivors generally require lifelong support from family caregivers. The abrupt onset of stroke and associated physical and cognitive impairments result in a series of complex and demanding interactions between family caregivers and stroke survivors. More than 40% of stroke caregivers develop depressive symptoms over time. The depression of family caregivers negatively impacts their physical health and caregiving role and directly affects the mental health and recovery of stroke survivors. Thus, effective strategies for stressful caregiving situations are urgently needed. As postulated in the relational/problem solving model of stress, problem-solving coping is a cognitive behavioral process that can enhance caregivers' well-being by changing caregiving situations and/or changing their negative emotional stress responses to stressful situations into positive responses. In view of the influence of negative emotions on the cognitive process of an individual, integrating perspective taking as a cognitive reappraisal strategy into the training of problem-solving coping skills may potentially improve the psychosocial well-being of family caregivers. This mixed method study aims (1) to examine the effects of a emotion-centered problem-solving intervention on the depressive symptoms, problem-solving coping, emotion regulation, caregiving competence, and health-related quality of life of stroke caregivers and on the physical functioning of stroke survivors; (2) to explore the mediating effect of emotion regulation and problem solving coping on caregivers' depressive symptoms, caregiving competence, and health-related quality of life and on stroke survivors' physical functioning; and (3) to understand how intervention influences depressive symptoms from a family caregiver's perspective. A total of 178 family caregivers will be recruited from various non-government organizations and nurse clinics for stroke patients of the Hospital Authority. Participants will be randomly allocated to the intervention group (IG) and control group (CG). Caregivers in the IG will receive an emotion-centered problem-solving intervention adopting a "shared problem, shared action plan" approach, whereas the caregivers in the CG will receive stroke-related education. Outcomes will be measured at baseline, 12 and 36 weeks after study entry. This study makes the first attempt to develop an emotion-centered problem-solving intervention and examine its effectiveness in the context of stroke caregiving. The findings will advance our understanding of emotional regulation and problem-solving coping strategies for reducing the depressive symptoms of stroke caregivers, ultimately providing a culturally sensitive medical-social service direction for the delivery of community-based rehabilitation services to stroke families.
Study Type
INTERVENTIONAL
Allocation
RANDOMIZED
Purpose
OTHER
Masking
SINGLE
Enrollment
178
The EPi is built upon the model of relational/problem-solving model of stress and is aimed at supporting caregivers in (1) revisiting stressful caregiving and associated problem from a psychological distanced perspective; (2) adopting problem orientation toward one's experience in the present moments with curiosity, openness and acceptance; and (3) applying the problem-solving skills learned for the enhancement of their psychosocial wellbeing in the stressful caregiving context. To reduce the incongruence between caregivers and stroke survivors in problem-solving, we will adopt a "shared problem, shared action plan" approach for the family caregivers and stroke survivors.
Information is related to stroke and recurrent stroke and strategies for assisting stroke survivors in day-to-day activities.
The Nethersole School of Nursing, Chinese University of Hong Kong
Hong Kong, Please Select, China
Depressive levels of caregivers
Measured by using the Chinese version of 20-item Center of Epidemiology Studies Depression Scale
Time frame: Change of depressive levels from baseline to 3 months and to 9 months
Problem-solving coping abilities of caregivers
Measured by using the Chinese version of Problem Solving Inventory
Time frame: Change of problem-solving coping abilities from baseline to 3 months and to 9 months
Emotion regulation strategies of caregivers
Measured by using the Chinese version of the Emotion Regulation Questionnaire
Time frame: Change of emotion regulation strategies from baseline to 3 months and to 9 months
Caregiving competence of caregivers
Measured by using the Chinese version of the Caregiving Competence Scale
Time frame: Change of caregiving competence from baseline to 3 months and to 9 months
Health-related quality of life of caregivers
Measured by using the Chinese version of the Medical Outcome Study 12-item Short Form Health Survey version 2
Time frame: Change of health-related quality of life from baseline to 3 months and to 9 months
Physical functioning of stroke survivors
Measured by using the Chinese version of the Modified Barthel Index (MBI)
Time frame: Change of physical functioning from baseline to 3 months and to 9 months
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