This study will investigate if parental physical activity levels, assessed by providing a physical activity questionnaire to parents of children aged 6-16 with Cystic Fibrosis (CF), is associated with their child with CF's physical activity levels. Children's activity levels will be taken from electronic records where a questionnaire is routinely given at annual reviews to analyse this. Parental activity levels will also be compared against adherence to nebulisers as a proxy for adherence to treatment, this data is again in the electronic records of patients and is collected at annual reviews.
Study Type
OBSERVATIONAL
Enrollment
30
No intervention will be provided, this is an observational study
GPAQ
Activity questionnaire for parents
Time frame: Reviews the past 7 days activities.
CPAQ
Physical activity Questionnaire for children aged 5-11 (From medical notes)
Time frame: Reviews the past 7 days activities.
YPAQ
Physical activity Questionnaire for children aged 12 and over (From medical notes)
Time frame: Reviews the past 7 days activities.
Ineb adherence
Adherence to recommended number of nebulised treatment from the i-adhere software downloaded from the ineb device.
Time frame: 1 year
Lung function
FEV1 (z-score and %), FVC (z-score and %), FEF2575 (z-score and %) (From medical notes)
Time frame: Best score in the last 1 year.
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