The aim of this study is to * detect and assess needs of people with early onset dementia regarding anxiety, stress and sleep * implement a 6 week intervention pilot study in wich weekly (hourly) sessions are implemented in day care settings in order to decrease anxiety, stress and sleep problems in people with early onset dementia
1. needs detection by means of survey and interviews 2. implementation of a 6 week program in day care facilities
Study Type
INTERVENTIONAL
Allocation
NA
Purpose
SUPPORTIVE_CARE
Masking
NONE
Enrollment
60
* needs detection by means of survey and interviews (mixed-methods) * 6 week program (1 hour) on a weekly basis including cognitive behavioural therapy, sleep/stress hygiene education, heart coherence exercises, mindfulness and relaxation exercises
Odisee University of Applied Sciences
Brussel, Flanders, Belgium
Familiezorg Oost Vlaanderen
Ghent, Oost-Vlaanderen, Belgium
anxiety (GAD7 validated questionnaire)
this is a subjective survey that measures the level of anxiety in daily life. It is a score of 7 items with a min of 0 and a max of 21. A higher score indicates a higher anxiety.
Time frame: 6 weeks
stress (perceived stress scale, PSS, validated questionnaire)
this is a subjective survey that measures the level of stress in daily life. It is a score of 10 items with a min of 0 and a max of 40. A higher score indicates a higher stress level.
Time frame: 6 weeks
sleep (Insomnia severity index, ISI, validated questionnaire)
this is a subjective survey that measures the level of insomnia. It is a score of 7 items with a min of 0 and a max of 28. A higher score indicates a worse level of insomnia
Time frame: 6 weeks
sleep (actigraph)
this is an objective measurement that measures the sleep quantity
Time frame: 6 weeks
emotional well being (WEMWBS, Warwick emotional mental wellbeing scale)
this is a subjective survey that measures the level of emotional well being in daily life. It is a score of14 items with a min of 0 and a max of 77. A higher score indicates a better wellbeing.
Time frame: 6 weeks
quality of life (QoL) (quality of life in dementia, QUALIDEM)
this is a subjective survey that measures the level of QoL in daily life. It is a score of 40 items with a min of 0 and a max of 160. Per (7) subscales the scores are cumulated.
Time frame: 6 weeks
heart rate variance (HRV)
this is an objective measurement that measures level of HRV in daily life, using (non-invasive photoplethysmography)
Time frame: 6 weeks
Depression (Patient Health Questionnaire PHQ-9, validated questionnaire)
this is a subjective survey that measures the level of depression in daily life. It is a score of 10 items with a min of 0 and a max of 27. A higher score indicates a more severe level of depression
Time frame: 6 weeks
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