This study aims to prospectively explore the effect of incentive-integrated E-IBD (electronic inflammatory bowel disease) chronic disease management model on the improvement of IBD quality of life, and provide a more effective chronic disease management model for improving the quality of life and social participation of IBD patients.The investigators firstly identify the IBD patients in need of empowerment disease activities through the questionnaire .Then, the investigators feedback the patients' education content according to their needs found.Based on the social support network of patient organization and the medical support network of tertiary medical institutions, the investigators complete the empowerment process of IBD patients' self-management initiative and self-management ability, through the internet. Finally ,the investigators evaluate the quality of life(QoL), social participation,disease self-management level via questionnaire . The primary outcome is the improvement of QoL score after three months' intervention.
Study Type
INTERVENTIONAL
Allocation
RANDOMIZED
Purpose
SUPPORTIVE_CARE
Masking
SINGLE
Enrollment
200
we would give targeted-education according to our patients' need(reflected via questionnaire; we would provide psycological and social support to patients based on their need reflected by questionnaire
Center of Inflammatory Bowel Disease, Department of Gastroenterology, the Second Affiliated Hospital, School of Medicine, Zhejiang University
Hangzhou, China
Department of Gastroenterology, Huzhou Central Hospital
Huzhou, China
Department of Gastroenterology, Ruijin Hospital
Shanghai, China
Department of Gastroenterology, Shaoxing Central Hospital
Shaoxing, China
Improved score of Quality of Life after three months
Improvement score of quality of life via short inflammatory bowel disease questionnaire(SIBDQ, score scale:0\~70 points) after intervention for three months,higher scores mean better quality of life.
Time frame: three months
Decreased score of Socially activity limited rating
Improvement score of socially activity limited rating after intervention for three months, or one year.
Time frame: three months,one year
Decreased score of Hospital Anxiety and Depression Scale
improvement score of anxiety or depression via Hospital Anxiety and Depression Scale after intervention for three months, or one year. Lower scores mean the less anxiety or depression of the patients.
Time frame: three months,one year
Increasion of disease kownledge
improvement of disease kownledge via Crohn's and Colitis Knowledge Score(CCKOWN, score scale: 0\~24 points) after intervention for three months, or one year. Higher scores mean better knowledge.
Time frame: three months,one year
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