The main objective of this study is to describe the management of children with rheumatoid purpura from admission to the pediatric emergency room to follow-up by primary care physicians after hospital discharge.
Secondary objectives The secondary objective is to assess general practitioners current knowledge and practice of the condition and potential barriers to monitoring and follow-up by general practitioners. Conduct of research Children diagnosed with rheumatoid purpura within the past 2 years at the 3 participating sites will be included in the study if parental authority holders do not object. Patients will be identified through the Medical Information Department of each hospital. Parents will be contacted - first by mail, then by phone - to request permission to collect the child's medical data from medical records, and to retrieve information on the surveillance and follow-up of the disease by general practitioners up to two years after diagnosis.
Study Type
OBSERVATIONAL
Enrollment
66
Collection of data on the management in pediatric emergency departments (method of diagnosis, complementary examinations, proposed treatment, number of hospitalizations, follow-up after hospital discharge).
Hôpitaux Civils de Colmar
Colmar, France
Hôpital de Hautepierre
Strasbourg, France
Compliance with the recommendations for the management of rheumatoid purpura
Time frame: Up to two years after hospital discharge
Knowledge assessment questionnaire regarding rheumatoid purpura
Evaluation of the knowledge and current practices of general practitioners regarding rheumatoid purpura and identification of the possible obstacles to management and follow-up in primary care, using an online survey
Time frame: At the beginning of the study
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