The goal of this interventional study is to determine the incidence of depression, anxiety, sleep disturbances and resilience in a sample of subjects affected by Hereditary Hemorrhagic Telangiectasia. The study is declined through the evaluation of some outcome parameters at the time of enrollment (T0), during the counseling intervention (T1 and T2) and at the end (T3) of the subjects who will have carried out an individual counseling intervention.
Study Type
INTERVENTIONAL
Allocation
NA
Purpose
SCREENING
Masking
NONE
Enrollment
50
Counseling is a process which, through positive orientation and the enhancement of personal resources, is aimed at promoting the improvement of the quality of life in the other.
Fondazione Policlinico Gemelli IRCCS
Rome, Italy
Hospital Anxiety and Depression Scale (HADS)
Administration of psychometric scales
Time frame: 12 months
Connor-Davidson Resilience Scale (CD-RISC)
Administration of psychometric scales
Time frame: 12 months
Pittsburgh Sleep Quality Index (PSQI);
Administration of psychometric scales
Time frame: 12 months
Impact of counseling on clients affected by rare diseases
Administration of psychometric scales
Time frame: 12 months
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