Interest of a Specific Care Pathway for the Management of Catamenial Epilepsy

University Hospital, Toulouse50 enrolled

Overview

This is a study of patients with catamenial epilepsy. Catamenial epilepsies are defined as epileptic seizures during the menstrual cycle. Today, there are no recommendations and no care pathway for these patients. The aim of this study is to assess the number of patients reporting a link between the occurrence of their epileptic seizures and their menstrual cycle.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Epilepsy Menstrual

Interventions

Data collectionOTHER

A collection about patient's data demographic, neurologic and gynecologic follow-up and satisfaction will be review by questionnaire. And a calendar of epileptic seizures will be completed by patients on 4 months

Eligibility

Sex: FEMALEMin age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: * Adults patients (\>18 years) * No menopausal * Patients who have consulted in a Neurology department for refractory epilepsy * Non opposition patient * Affiliation to a social security scheme Exclusion Criteria: * Patients who understand French enough

Locations (1)

University Hospital Toulouse

Toulouse, France

Outcomes

Primary Outcomes

Number of reporting patients

Number and proportion of patients reporting having a link between the onset of their epileptic seizures and their menstrual cycle based on the questionnaire they completed.

Time frame: 4 months

Secondary Outcomes

Listening satisfaction

Questionnaire about listening satisfaction by the professional

Time frame: 4 months

Satisfaction of taking charge

Questionnaire about satisfaction of management by the professional

Time frame: 4 months

Rate of women with drug-resistant epilepsy

Collection calendar

Time frame: 4 months

Reconciliation of catamenial epilepsy

Comparison of epilepsy collection calendar and questionnaire. The questionnaire includes demographic data, neurological demographic data, their neurological and gynaecological follow-up, and also their satisfaction with their care and the information received on their pathology.

Time frame: 4 months

Association between catamenial epilepsy and menstrual cycle

Research of an association between catamenial epilepsy and menstrual cycle

Time frame: 4 months

Existing associations

Evaluate link between different factors obtained during the collection (contraceptions, epileptics, menstrual cycle disorders, etc.) and the presence of catamenial epilepsy

Time frame: 4 months

Data from ClinicalTrials.gov

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