A Research Registry on Aggressive PitNETs

Hospices Civils de Lyon200 enrolled

Overview

To allow the identification of markers, it is necessary to extend research networks more widely to collect and properly explore aggressive pituitary tumours. The multidisciplinary consultation meeting (RCP), organised by the reference centre for rare diseases of the pituitary gland, dedicated to aggressive pituitary tumours and carcinomas (HYPOcare), which is unique in France and brings together national experts, currently makes it possible to orientate the management of patients with an aggressive pituitary tumour. With more than 80 patient files discussed since its inception, the patient cohort via the HYPOcare RCP is one of the largest both nationally and internationally. At present, this data source is only dedicated to the clinical management of the files without the possibility of carrying out research work

Study Type

OBSERVATIONAL

Enrollment

200

Conditions

Endocrine Tumor

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

* Inclusion Criteria : * Patients with a diagnosis of pituitary tumour * Patients whose file has been presented to the national HYPOcare RCP * Exclusion Criteria : * Patients objecting to participating in this research

Locations (1)

Hospices Civils de Lyon - Groupement Hospitalier Est

Lyon, France

Outcomes

Primary Outcomes

Characterisation of aggressiveness of pituitary tumours by tanscriptome analysis

Molecular and transcriptomic signature of aggressiveness of pituitary tumours predictive of prognosis

Time frame: 3 years