This study will test a decision support intervention that consists of a web-based 'decision aid and planning tool' for family building after cancer in a randomized controlled trial.
Study Type
INTERVENTIONAL
Allocation
RANDOMIZED
Purpose
SUPPORTIVE_CARE
Masking
NONE
Enrollment
260
web-based decision support
web-based informational booklet about young adult cancer survivorship
Stanford Universtiy
Palo Alto, California, United States
Decision Conflict Scale
Decisional Conflict Scale is a validated survey that assesses personal uncertainty in making healthcare decisions; modifiable factors contributing to uncertainty; and the quality of the decision made. The survey has 16 questions, with responses on a 5 point scale ranging from "strongly agree" (1) to "strongly disagree" (5). Total scores range from 16 to 80, with higher scores indicating greater uncertainty (worse outcome)
Time frame: 12 months
Planning Behaviors for Future Family Building
Yes and No (Y/N) question of whether participants completed "next step" planning behaviors aligned with their family-building goals
Time frame: 12 months
Patient-Reported Outcomes Measure-29 (PROMIS-29) Quality of Life
PROMIS-29 assesses seven domains of health-related quality of life including physical function, anxiety, depression, ability to participate in social roles and activities (social participation), fatigue, pain interference, and pain intensity. Items are scored on a 5-point scale (range 1-5). From the sum of the answers to each question in the domain, the total raw score for each domain is calculated, resulting in seven domain scores, each between 4 and 20
Time frame: 12 months
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