People Living With HIV, Oral and Oropharyngeal Cancer, and Health Equity

University of California, San Francisco144 enrolled

Overview

This is an exploratory qualitative study among People Living With HIV (PLWH) of diverse racial/ethnic and sexual and gender minority (SGM) identities to explore individual, interpersonal, and structural oral health equity factors that serve as barriers or facilitators of accessing oral health care, knowledge and perceptions of human papillomavirus (HPV) vaccination and Oral squamous cell carcinoma (OSCC) /Oropharyngeal squamous cell carcinoma (OPSCC), and to collect recommendations on how to increase access to oral health care and engage PLWH in OSCC/OPSCC prevention.

OBJECTIVES: 1. To identify individual, interpersonal, and structural oral health equity factors (e.g., internalized stigma; enacted stigma; transportation/hours) that serve as barriers or facilitators to accessing regular and appropriate oral health care, among PLWH of intersecting racial/ethnic and SGM groups. 2. To explore knowledge and perceptions about causes, risk factors, prevention, and screening for OSCC/OPSCC and HPV vaccination and if identity group membership influences knowledge and perceptions of these issues. 3. To elicit recommendations for improving access to regular and appropriate oral health care, and suggestions on how to engage PLWH from diverse identity groups in prevention interventions. OUTLINE: There will be one screening and enrollment phone call and only one study visit for the Focus Group Discussions (FDGs). A short quantitative survey will be administered.

Study Type

OBSERVATIONAL

Enrollment

144

Conditions

HIV Infections Oral Squamous Cell Carcinoma Oropharyngeal Squamous Cell Carcinoma

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: * Participants must be 18-years old or older. * Participants must be individuals living with HIV * Ability to speak and understand English * Identify as one or more racial/ethnic minority groups or sexual and gender minority groups * All genders and members of all races and ethnic groups are eligible for this study. Exclusion Criteria: * Younger than 18-years old. * Not living with HIV. * Not able to speak and understand English. * Not classified as one or more racial/ethnic minority groups or sexual and gender minority groups.

Outcomes

Primary Outcomes

Identification of potential oral health equity factors

Participants will complete a baseline questionnaire which will aid in the formation of the focus group with other individuals of shared identity. The Focus Group Discussions (FGDs) will be transcribed, coded, and the focus group guide will be updated following the Grounded Theory qualitative research methodology. The "data" from the FGD are the audio recordings and the transcripts. The digital transcript of each focus group will be uploaded to the software MAXQDA to aid with coding and analysis in identifying individual, interpersonal, and structural factors, if any, that may impact accessing oral health care.

Time frame: Up to 3 days

People Living With HIV, Oral and Oropharyngeal Cancer, and Health Equity

Overview

Conditions

Interventions

Eligibility

Locations (1)

Outcomes

Primary Outcomes

Central Contacts