Facilitating Advance Care Planning Discussions for People With Advanced Cancer

N/ACompletedNCT06061965

University of Illinois at Chicago36 enrolled

Overview

The aims of this study are to (1) identify the advance care planning deliberation process among 20 dyads of patients with advanced cancer and family caregivers and (2) conduct usability testing among 9 dyads to refine the content and design of the web-based resilience-building intervention.

Patients with advanced cancer have not fully benefited from advance care planning due to the high levels of anxiety and depression experienced and other barriers that affect their appraisals and coping. Despite the protective effects of resilience, there have been few clinical trials improving the resilience skills of patients with advanced cancer and their family caregivers to help initiate advance care planning discussions and sustain engagement. This research will provide new insights through using a dyadic intervention approach to advance care planning while developing and evaluating a web-based resilience-building intervention to improve the completion of advance directives, resilience, coping, anxiety, and depression for patients with advanced cancer and their family caregivers.

Study Type

INTERVENTIONAL

Allocation

Purpose

SUPPORTIVE_CARE

Masking

NONE

Enrollment

Conditions

Resilience, Psychological Advance Care Planning

Interventions

Web-based resilience-building interventionBEHAVIORAL

There are 6 modules on the website. Participants will be encouraged to verbalize their impressions of the website prototype.

Eligibility

Sex: ALLMin age: 18 YearsMax age: 80 Years

Medical Language ↔ Plain English

Inclusion Criteria: * Patients will be eligible for the study if they (1) are ≥ 18 years of age; (2) have a cancer diagnosis; (3) are able to read and respond to questions in English with minimal assistance from family caregivers for interpretation; (4) have previously completed an advance directive such as a living will; (5) have a family caregiver who serves as a surrogate in the advance directive and is willing to participate in the study; and (6) have access to the internet on a cell phone, laptop, or computer. * Family caregivers will be eligible if they (1) are ≥ 18 years of age; (2) are able to read and respond to questions in English with minimal assistance from others for interpretation; (3) are identified by the patient as a family caregiver who serves as a surrogate for health care decisions; and (4) have access to the internet on a cell phone, laptop, or computer. Exclusion Criteria: * Patients who have cognitive impairment per a Short Portable Mental Status Questionnaire score \< 8.

Locations (1)

University of Illinois Chicago

Chicago, Illinois, United States

Outcomes

Primary Outcomes

Usability

Qualitative feedback from participants about the impressions of the website prototype

Time frame: Immediately at the end of the usability testing

Data from ClinicalTrials.gov

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