To explore the feasibility and best methodology for collecting patient-reported outcome measures in patients who have previously been treated for cancer and are living in the community. The investigators are working with primary care research teams, and using an online electronic questionnaire. Although the study is entirely observational, the study offers some of the questions in a random order, so the investigators can explore the effect of changing the way in which questions are asked.
INDIGO Community aims to both collect data on patient-reported outcome measures (PROMS) and patient-reported experience measures (PREMS) and data on the impact of how to do this. The focus is on adult patients living in the community who have previously been treated for cancer. The study uses a range of quality of life questionnaires, and randomises the order in which some questions are asked, in order to explore the impact of how questions are asked on responses. All patients with be offered the EuroQol 5 dimension, 5 level questionnaire (EQ5D-5L)
Study Type
OBSERVATIONAL
Enrollment
20,000
Imperial College Healthcare NHS Trust
London, United Kingdom
Completion of study questionnaire
Proportion of patients completing the entire study questionnaire
Time frame: 12 months
Agreement to link to national cancer data
Proportion of patients agreeing to link their data to national cancer data
Time frame: 12 months
Completion of PROMs questionnaires
Proportion of patients completing PROMS questionnaires
Time frame: 12 months
Satisfaction with questionnaires
Patient-reported satisfaction with questionnaires, expressed as average scores (on a scale of 1 - 10, where 10 is better) and proportion scoring 5 or over
Time frame: 12 months
Effectiveness of different communication channels for recruitment
Enrolment rate via different recruitment channels (Primary Care Research Network, Social Media) expressed as the proportion of patient recruited via each channel
Time frame: 12 months
Correlation of each PROM score with quality of life
Correlation of each PROM score with the EuroQol 5 Dimensions, 5 levels (EQ5D-5L) quality of life measure
Time frame: 12 months
This platform is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional.