In this pilot study, physicians and nurse practitioners working in different care settings will use MuSt-PC, for adult patients with any life-limiting iilness, for whom the Surprise question is answered negatively: if the HCP answers "no" to the question "Would I be surprised if this patiënt died in the next 12 months?''. In total, at least 20 eligible patients will be recruited and asked to perform all study assessments.
In this pilot study, physicians and nurse practitioners working in different care settings will use MuSt-PC, for adult patients with any life-limiting iilness, for whom the Surprise question is answered negatively: if the HCP answers "no" to the question "Would I be surprised if this patiënt died in the next 12 months?''. In total, at least 20 eligible patients will be recruited and asked to perform all study assessments. After a baseline screening assessment, all eligible patients with at least 2 simultaneously occurring symptoms with a numeric rating score £4 on the 11 point scale on the Utrecht Symptom Diary, will be asked to fiil out the Utrecht Symptom Diary during two weeks. In the first week twice daily (morning and evening), in the second week once daily (evening).
Study Type
INTERVENTIONAL
Allocation
NA
Purpose
SUPPORTIVE_CARE
Masking
NONE
Enrollment
44
After a baseline screening symptom assessment, all eligible patients with at least 2 simultaneously occurring symptoms with a numeric rating score ≥4 on the 11 point scale on the Utrecht Symptom Diary, will be asked to fill out the Utrecht Symptom Diary during two weeks. In the first week twice daily (morning and evening), in the second week once daily (evening).
University Medical Center Groningen
Groningen, Netherlands
LUMC
Leiden, Netherlands
Ability and willingness of patients to complete follow-up assessments
the percentage of patients who completed all questionnaires during follow-up
Time frame: after 2 weeks
Recruitment of patients; the number of patients that consented and those that declined participation, as well as number of eligible patients.
% of patients
Time frame: after 2 weeks
Adherence to advice by patients provided based on the MuSt-PC CDSS
% of patients
Time frame: after 2 weeks
Patient impressions of the MuSt-PC CDSS
10 questions with a 4-point Likert scale
Time frame: after 2 weeks
Time until symptom burden decreases after the use of the MuSt-PC CDSS based on the filled out Utrecht Symptom Diaries (days)
in days
Time frame: after 2 weeks
Feedback about the follow-up assessments within this pilot
open questions
Time frame: after 2 weeks
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