Life-dependent Home Mechanical Ventilation

Rigshospitalet, Denmark200 enrolled

Overview

In Denmark, life-dependent home-mechanical ventilation (HMV) is given under the surveillance of a specifically trained respiratory patient caregiver (tPCG). The HMV can be invasive through a tracheostomy or non-invasive via a mask. The purpose of this study is to uncover experiences and challenges associated with having a trained respiratory patient care giver (tPCG) to surveil home-mechanical ventilation (HMV) from the perspective of the patients and their families and to gather information about the expirence of working in a home as a tPCG

Study Type

OBSERVATIONAL

Enrollment

200

Conditions

Ventilator Lung

Eligibility

Sex: ALLMin age: 18 YearsHealthy volunteers:

Medical Language ↔ Plain English

Inclusion Criteria: Patient Age \> 18 years Has trained patient care givers to surveil the respiratory treatment and working on the responsibility of the Respiratory Center East Parent Age \> 18 years Has a child less than 18 years old with tPCG, working on the responsibility of the Respiratory Center East, to surveil the home-mechanical ventilation Other relative: Age \> 18 years Involved in the treatment or support of a relative with tPCG, working on the responsibility of the Respiratory Center East, to surveil the home-mechanical ventilation Trained patient caregivers (tPCG) Age \> 18 years Employed by an external agency or by the patient (BPA) to surveil home-mechanical ventilation Certified as tPCG working on the responsibility of the Respiratory Center East Exclusion Criteria: * No informed consent to participate

Locations (1)

Department of Anaesthesia, Pain and REspiratory Support

Glostrup Municipality, Denmark

Outcomes

Primary Outcomes

Severe respiratory insufficiency questionnaire

The patients will be asked to fullfill the questionnaire

Time frame: Assessed within the last 7 days

Data from ClinicalTrials.gov

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