Long-term Outcomes Associated With Juvenile-onset Mycosis Fungoides and Lymphomatoid Papulosis

N/ARecruitingNCT06207812

M.D. Anderson Cancer Center100 enrolled

Overview

To follow up with all our participants with juvenile-onset mycosis fungoides, check on their status, and ask them or their parents about long term outcomes associated with their condition.

Primary Objective -To characterize the long-term outcomes associated with juvenile-onset mycosis fungoides (jMF) and lymphomatoid papulosis (lyp). The study will consider metrics such as 5-year and 10-year overall survival, and overall disease activity. Secondary objective -To characterize treatments and associated comorbidities.

Study Type

OBSERVATIONAL

Enrollment

100

Conditions

Lymphomatoid Papulosis Mycosis Fungoides

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: -To be eligible, participants had to be diagnosed with jMF or lyp before age 20. In the case of participants below the age of 18, parents and not the children will be contacted for participation (children are exempt from participation as their parents may answer our study questions). Exclusion Criteria: -Participants older than 20 years of age at diagnosis

Locations (1)

MD Anderson Cancer Center

Houston, Texas, United States

RECRUITING

Outcomes

Primary Outcomes

Safety and adverse events (AEs)

Incidence of Adverse Events, Graded According to National Cancer Institute Common Terminology Criteria for Adverse Events (NCI CTCAE)

Time frame: Through study completion; an average of 1 year

Central Contacts

Julia Dai, MD

CONTACT

(713) 515-7961 jdai6@mdanderson.org

Data from ClinicalTrials.gov

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