Previous research on the impact of a diary on mental symptoms of PICS, PICS-F, and quality of life in former ICU patients and their relatives has focused specifically on a paper diary. While there has been research on the experiences of former ICU patients, relatives, and ICU nurses regarding the use of a digital diary, it is not known whether this diary has an impact on the psychological well-being and quality of life of former ICU patients and their relatives. A successful implementation of \[the digital diary\] enables this research. The aim of this study is, therefore, to provide an initial impression of the health-related effects of a digital diary on former ICU patients and their relatives.
Objective: Exploring health-related effects of a digital ICU diary in former ICU patients and their relatives. Research question 1: What is the effect of a digital ICU diary on the psychological well-being and quality of life in former ICU patients and their relatives? Research question 2: What is the effect of a digital ICU diary on the perceived quality of care and satisfaction with the ICU admission among relatives of former ICU patients?
Study Type
OBSERVATIONAL
Enrollment
400
A digital ICU diary is an electronic platform or application designed to facilitate the documentation and communication of the experiences, progress, and medical journey of patients in the Intensive Care Unit (ICU).
Erasmus University medical center
Rotterdam, South Holland, Netherlands
RECRUITINGMedisch Spectrum Twente
Enschede, Netherlands
RECRUITINGFranciscus Gasthuis & Vlietland
Rotterdam, Netherlands
RECRUITINGElisabeth-TweeSteden ziekenhuis
Tilburg, Netherlands
RECRUITINGNumber of participants with Post Traumatic Stress Disorder (PTSD) [IES-R]
PTSD-related symptoms measured with the IMPACT OF EVENTS SCALE-Revised (IES-R)
Time frame: 1-3 months after ICU admission
Number of participants with Anxiety or Depression-related symptoms [HADS]
Anxiety-related and depression-related symptoms measured with Hospital Anxiety and Depression Scale (HADS)
Time frame: 1-3 months after ICU admission
The participants' level of quality of life [SF36]
The participants' level of quality of life measured with 36-Item Short Form Health Survey SF-36
Time frame: 1-3 months after ICU admission
Relatives' perspectives on the quality of care [CQI-R]
Relatives' perspectives on quality of care and satisfaction measured with Consumer Quality Index- Relatives (CQI-R)
Time frame: 1 month after ICU admission
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