The goal of this observational study is to learn about how Chinese Americans engage in advance care planning (ACP) discussions with their family caregivers. The main questions it aims to answer are: 1. How do religious leaders discuss advance care planning and death-related topics with Chinese Americans who are diagnosed with cancer or heart disease in Chicago? 2. Are Chinese Americans living in Chicago ready to participate in ACP discussions with their family? 3. What kind of support and resources are required to engage in end-of-life care discussions among Chinese Americans/immigrants living in Chicago? 4. What do Chinese Americans with cancer, high blood pressure, or heart disease and their family members think about an ACP pamphlet made for Chinese Americans? Participants will share their experience either through interviews or a survey.
The overall objective of this pilot study is to develop a culturally tailored resilience-building intervention for Chinese Americans with cancer or heart disease in Chicago. A qualitative analysis of semi-structured interviews will be conducted to identify how religious leaders addressed death-related topics with Chinese Americans with cancer, heart disease, or hypertension in Chicago. In addition, a mixed-method study using surveys and focus groups to understand the readiness, support, and resources of Chinese Americans living in Chicago to participate in ACP discussions with their family. Finally, a usability study will ask Chinese Americans with cancer, high blood pressure, or heart disease, and their family members, to share feedback on an ACP pamphlet designed for Chinese Americans.
Study Type
OBSERVATIONAL
Enrollment
125
Religious leaders who have experience providing pastoral or spiritual care to Chinese Americans living in Chicago
Chinese Americans living in Chicago.
Chinese Americans who have experience discussing end-of-life care decisions with others.
Chinese Americans who are diagnosed with cancer, hypertension, or heart disease and their family caregivers
University of Illinois Chicago
Chicago, Illinois, United States
Readiness, Support and Resources for ACP Discussions
The Advance Care Planning Engagement Survey was used to evaluate the readiness for advance care planning discussions among Chinese Americans living in Chicago.
Time frame: Immediately at the end of the study
Support Needed for ACP Discussions
An in-depth understanding of the support and resources needed to engage in ACP discussions with their family among Chinese Americans who have experience discussing end-of-life care with others.
Time frame: Immediately at the end of the study
Strategies Used for ACP and Death-related Discussions
An in-depth understanding of barriers and strategies used to assist Chinese Americans/immigrants in ACP and death-related discussions.
Time frame: Immediately at the end of the study
Acceptability of an ACP pamphlet
An in-depth understanding of Chinese Americans' views and acceptability on an ACP pamphlet.
Time frame: Immediately at the end of the study
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