The goal of this observational research registry is to learn about health, wellbeing, and needs of survivors of young adult cancer (diagnosed between the ages of 18 and 39). The main question\[s\] it aims to understand are: * What are the levels of depression, anxiety, social support, and financial distress * Determine effectiveness of YASU programming by measuring changes over time With this registry, the investigators also plan to identify survivors who may be eligible for participation in future research studies pertaining to young adult cancer. Participants will be asked to complete electronic surveys every 6 to 12 months during participation in the registry.
The study will be conducted online.
Study Type
OBSERVATIONAL
Enrollment
192
Young Adult Survivors United
Wexford, Pennsylvania, United States
Anxiety
General Anxiety Disorder-7 (GAD-7). Scores range from 0-21 with higher scores indicating higher levels of anxiety.
Time frame: enrollment in registry, 6 months later, yearly until death
Depressive symptoms
Patient Health Questionnaire- 9 (PHQ-9) Scores range from 0-27, with higher scores indicating more depressive symptoms.
Time frame: enrollment in registry, 6 months later, yearly until death
Social Support
MOS Social Support Survey Instrument The survey consists of four separate social support subscales and an overall functional social support index. A higher score for an individual scale or for the overall support index indicates more support. MOS Social Support Survey Instrument Measure of Social Support Survey Instrument
Time frame: enrollment in registry, 6 months later, yearly until death
Financial Toxicity
COST: A FACIT Measure of Financial Toxicity (COST - FACIT (Ver 2)) Scores range from 0-44. The higher the score, the better the Financial Well-Being
Time frame: enrollment in registry, 6 months later, yearly until death
Needs Assessment
AYA Psycho-Oncology Screening Tool (AYA-POST) There is no scoring required for this tool.
Time frame: enrollment in registry
Name, address, email, phone number
Contact information if willing to be alerted about future research
Time frame: enrollment in registry
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