The purpose of this clinical trial is to see if an online intervention program for people with Systemic Sclerosis (scleroderma) helps keep people in the workforce and increase self-confidence in dealing with challenges at work. The program is called Making it Work Systemic Sclerosis. Researchers will compare a group who gets the program to a group who will get the program at a later point in time (wait list control group) to see if self-confidence in dealing with work challenge gets better. People in the Making it Work group will complete questionnaires and attend one 2 hour meetings each week for 5 weeks and meet with an occupational therapist and vocational counselor. People in the wait list control group will complete the questionnaires and participate in the program at a later point in time.
Study Type
INTERVENTIONAL
Allocation
RANDOMIZED
Purpose
TREATMENT
Masking
NONE
Enrollment
33
One 2 hour virtual meeting per week for 5 weeks, plus an individual meeting with an occupational therapist and a vocational counselor
University of New Mexico
Albuquerque, New Mexico, United States
Job Related Self-efficacy Scale
Measures self-efficacy for managing problems/challenges at work
Time frame: baseline, 5 weeks, 12 weeks, 24 weeks
Job Self-Efficacy Scale
Measures confidence in concepts targeted by the Making it Work Program such as disease management at work, stress management, ability to communicate effectively, obtaining job accommodations
Time frame: baseline, 5 weeks, 12 weeks, 24 weeks
Work Productivity and Activity Impairment Questionnaire Specific Health Problem Subscale
Measures absenteeism \[secondary outcome; hours and days missed from work due to SSc\] and presenteeism \[secondary outcome; at-work productivity\].
Time frame: baseline, 5 weeks, 12 weeks, 24 weeks
The Work Instability Scale
Measures risk for future work loss
Time frame: baseline, 5 weeks, 12 weeks, 24 weeks
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