The Project AWARE 2.0 Survey is intended to gain knowledge about the feelings, attitudes, and beliefs of HD family members, care partners and others affected by HD towards the way drug trials and observational studies are communicated and conducted.
The Project AWARE 2.0 Survey will be offered to HD families via HSG's online platform called myHDstory®. The survey will obtain input and knowledge about their feelings, attitudes, and beliefs concerning clinical research and the process by which HD studies are communicated and conducted. Project AWARE 2.0 is intended to provide the HD research community with the insight and tools to help (a) improve prospective research participants' awareness, willingness, and ability to participate in clinical research for HD; and (b) design clinical studies and trials in the future.
Study Type
OBSERVATIONAL
Enrollment
131
Huntington Study Group
Rochester, New York, United States
Examine awareness
To examine prospective research participants' awareness, willingness, and ability to participate in clinical research for HD.
Time frame: December 2024
Provide the HD research community with the insight.
Provide the HD research community with insight to design clinical studies and trials in the future.
Time frame: December 2024
This platform is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional.