EULAR Impact of Rheumatic and Musculoskeletal Diseases Survey

Diagnosis history - physician treating the RMD

Primary physician specialty treating the patient

Time frame: every 6 months for up to 5 years

Diagnosis history - outpatient care history

number of medical appointments for the past 6 months

Time frame: every 6 months for up to 5 years

Diagnosis history - timeline

waiting time for medical appointments and time spent in medical appointments

Time frame: every 6 months for up to 5 years

Diagnosis history - Inpatient care

number of days of hospitalization during the past 6 months.

Time frame: every 6 months for up to 5 years

Non-pharmacological and pharmacological treatments.

Names of medications taken by the patients (from a list)

Time frame: every 6 months for up to 5 years

Other chronic diseases

diagnosis of chronic diseases other than RMD and medication taken for these conditions.

Time frame: every 6 months for up to 5 years

Disease burden - impact of disease

Rheumatic Arthritis Impact of Disease (RAID) version 7 questionnaire. The RAID is calculated based on 7 Numerical rating scales (NRS) questions. Each NRS is assessed as a number between 0 and 10. The 7 NRS correspond to pain, function, fatigue, sleep, emotional well-being, physical well-being, and coping/self-efficacy. The range of the final RAID value is 0-10 where higher figures indicate worse status.

Time frame: every 6 months for up to 5 years

Disease burden - health assessment

Health assessment questionnaire version 2 (HAQ2). The HAQ comprises of 20 questions covering 20 daily activities. These are divided in eight domains: dressing and grooming, rising, eating, walking, hygiene, reaching, gripping, and other activities. Each question is scored according to a four-point scale (0-3), and the highest scores from each domain are summed and divided by eight, to derive a total HAQ score, which ranges from 0 to 3 (3 = highest level of disability).

Time frame: every 6 months for up to 5 years

Disease burden - quality of life

patient health questionnaire (PHQ-8). The PHQ-8 is a self-reported measure of depressive symptoms composed of 8 Likert type items with a response scale ranging from 0 (Not at all) to 3 (Nearly every day), that refer to the presence of that symptom during the previous 2 weeks.Each item corresponds to the first 8 symptoms of the 4th edition of the DSM-IV diagnostic criteria for major depressive disorder. The PHQ-8 final score is obtained by adding the score for each of the items, ranging from 0 to 24 (higher scores corresponding to higher levels of depression).

Time frame: every 6 months for up to 5 years

Consequences on work and life (WPAI questionnaire)

work productivity and activity impairment questionnaire (WPAI), including total number of sick leave days due to RMD in the past 6 months. Final score is calculated in % higher scores on the WPAI indicate worse outcomes

Time frame: every 6 months for up to 5 years

Other barriers due to RMD

impact on family, leisure, social and work activities (quality of life questionnaire)

Time frame: every 6 months for up to 5 years

Health care

support from professionals (general questionnaire), satisfaction with care (scale, 1= low, 5 = high satisfaction)

Time frame: every 6 months for up to 5 years

Demographics - persons living with patient

number of persons living in household

Time frame: every 6 months for up to 5 years

Demographics - professional status

professional status

Time frame: every 6 months for up to 5 years