LEAD-HD is intended to collect and analyze self-reported health information from individuals with Huntington Disease (HD) or prodromal HD participating in a 24-month longitudinal natural history study using remote technologies.
The LEAD-HD study will be offered via HSG's online observational research platform called myHDstory®. This direct to patient study will collect and analyze self-reported health information from individuals with Huntington Disease (HD) or prodromal HD in a 24-month longitudinal natural history study that participants complete at any time and with their own electronic device.
Study Type
OBSERVATIONAL
Enrollment
600
Huntington Study Group
Rochester, New York, United States
RECRUITINGPRO natural history
Obtain PRO natural history data in HD.
Time frame: December 2026
Demographic characteristics
Identify demographic characteristics that are associated with faster or slower disease progression.
Time frame: December 2026
Assess the ability to consent and enroll
Assess the ability to consent and enroll participants in long-term longitudinal studies in HD using a direct-to-patient platform.
Time frame: December 2026
This platform is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional.