The purpose of this study is to pilot test the adapted Improving Home hospice Management of End-of-life issues through technology (I-HoME) intervention with family caregivers of patients with advanced Alzheimer's Disease and related dementia. Data will be collected regarding intervention feasibility and acceptability.
Study Type
INTERVENTIONAL
Allocation
NA
Purpose
SUPPORTIVE_CARE
Masking
NONE
Enrollment
15
Video visits with a nurse practitioner for up to six visits every 2 weeks to address symptom management and care needs
Weill Cornell Medicine
New York, New York, United States
Feasibility, as Measured by the Percentage of Caregivers Who Enroll in the Study
Feasibility was measured by the percentage of caregivers who enrolled in the study out of all eligible participants.
Time frame: Recruitment (7 months)
Feasibility, as Measured by the Percentage of Tele-visits Conducted
Feasibility was measured by dividing the number of tele-visits conducted by the number of tele-visits that could have been conducted, then multiplying by 100. This measure shows the adherence of the intervention arm to the tele-visits. The percentage is calculated for the group rather than the individual patient.
Time frame: At the end of the intervention or at 12 weeks, whichever is earlier
Change in Behavioral and Psychosocial Symptoms of Dementia (BPSD) in the Patient, as Measured by the Neuropsychiatric Inventory Questionnaire
Change in behavioral and psychosocial symptoms of dementia (BPSD) in the patient, as measured by the Neuropsychiatric Inventory Questionnaire. Scale is from 0 to 36, with higher scores indicating more severe BPSD.
Time frame: Baseline, 2, 4, 6, 8, 10, 12 weeks
Mean Caregiver Depression Score, as Measured by Patient Health Questionnaire-8
Mean caregiver depression score, as measured by Patient Health Questionnaire-8. Scale is from 0 to 24, with higher scores indicating more severe depression.
Time frame: Baseline, 2, 4, 6, 8, 10, 12 week
Mean Caregiver Anxiety Score, as Measured by General Anxiety Disorder-7
Mean caregiver anxiety score, as measured by General Anxiety Disorder-7. Scale is from 0 to 21, with higher scores indicating more severe anxiety.
Time frame: Baseline, 2, 4, 6, 8, 10, 12 weeks
This platform is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional.
Mean Caregiver Burden Score, as Measured by the Zarit Burden Interview - Short Version
Mean caregiver burden score, as measured by the Zarit Burden Interview - short version. Scale is from 0 to 48, with higher scores indicating higher caregiver burden.
Time frame: Baseline, 2, 4, 6, 8, 10, 12 weeks
Mean Caregiver Perception of Patient's Pain Score, as Measured by the Doloplus 2 Scale Behavioral Assessment
Mean caregiver perception of patient's pain score, as measured by the Doloplus 2 Scale behavioral assessment. Scale is from 0 to 30, with higher scores indicating greater pain.
Time frame: Baseline, 2, 4, 6, 8, 10, 12 weeks