The goal of this clinical trial is to assess changes in functional and psychosocial outcomes following a 12-week adaptive rock-climbing program for children with congenital upper limb differences. The main questions it aims to answer are * Assess functional outcomes following a 12-week adaptive rock-climbing program. * Assess psychosocial outcomes following a 12-week adaptive rock climbing program. * Assess barriers to participation in adaptive sports. Participants will complete 12-week adaptive rock climbing program.
Study Type
INTERVENTIONAL
Allocation
NA
Purpose
SUPPORTIVE_CARE
Masking
NONE
Enrollment
20
Twelve week rock climbing program. The program will take place once per week over the course of twelve weeks.
Children Hospital Los Angeles
Los Angeles, California, United States
RECRUITINGChange from Baseline in Range of Motion at 12 Weeks
An occupational therapist will measure the passive and active range of motion. These measurements will be conducted for the following: shoulder flexion, shoulder abduction, shoulder internal rotation, shoulder external rotation, elbow flexion/extension, forearm supination, forearm pronation, wrist extension, and wrist flexion. This will be measured in degrees.
Time frame: Baseline and 12 weeks
Change from Baseline in KINDL Scores at 12 Weeks
The KINDL questionnaire will be completed by both child and parent. It includes 24 Likert-scaled items associated with emotional well-being and self-esteem. Questionnaires will be scored according to instructions provided by KINDL.
Time frame: Baseline and 12 weeks
Change from Baseline in Muscle Testing at 12 Weeks.
Manual muscle testing will be measured by an occupational therapist. This will be measured from grade 0 to 5.
Time frame: Baseline and 12 weeks
Change from Baseline in PROMIS Life Satisfaction Scores at 12 Weeks.
To assess positive affect and well-being, children and parents will complete the PROMIS Pediatric Life Satisfactions v1.0 8-item Short Form. Patients will respond to statements such as "I was satisfied with my life," on a scale of 1 "Not at all" to 5 "Very much."
Time frame: Baseline and 12 weeks
Change from Baseline in PROMIS Pediatric Global Health Scores at 12 Weeks
To gain a general view of participants' perception of their own physical, emotional, and relational health, children will also be asked to complete the PROMIS Pediatric Global Health v1.0 7-item Short Form. Participants will respond to 7 statements on a scale of 5 "Excellent" to 1 "Poor."
Time frame: Baseline and 12 weeks
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Assess Barriers to Participation in Adaptive Sports
Identify common transportation barriers through a demographic survey with transportation questions.
Time frame: At 12 weeks (post-intervention)