This study is a non-interventional, observational study that will evaluate the natural history of corneal abrasions in patients with Dystrophic Epidermolysis Bullosa (DEB).
The objective of this study is to characterize the natural history of corneal abrasions in patients with Dystrophic Epidermolysis Bullosa (DEB). Patients will be followed via remote weekly symptom diaries and monthly questionnaires to assess corneal abrasion symptoms, frequency, and duration.
Study Type
OBSERVATIONAL
Enrollment
40
Krystal Biotech
Pittsburgh, Pennsylvania, United States
RECRUITINGCorneal abrasion frequency
Frequency of corneal abrasion symptoms
Time frame: Baseline through up to 1 year
Epidermolysis Bullosa Eye Disease Index Symptom Score
Symptom score for Epidermolysis Bullosa related eye problems, 0 to 30 (higher score indicates worse symptoms)
Time frame: Baseline through up to 1 year
This platform is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional.