Caregivers Preparing for Their Own Health Care Emergency

University of California, Davis68 enrolled

Overview

The proposed research will develop and test an online Emergency Preparedness Toolkit to help caregivers prepare for their own unexpected health events. Caregivers of persons with dementia often ignore their own health needs as their primary focus is the care of the person with dementia. This can lead to a caregiver delaying their own care and subsequently emergent health events. The Emergency Preparedness Toolkit provides guidance to the caregiver as to how to identify and transfer care to a standby caregiver. The goal is to provide a caregiver with the security and comfort that the person with dementia will be well cared for while they care for their own health needs.

Study Type

INTERVENTIONAL

Allocation

RANDOMIZED

Purpose

PREVENTION

Masking

DOUBLE

Enrollment

Conditions

Dementia Caregiver Burden

Interventions

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: * Must be 18 years of age or older at the time of signing the informed consent * Must self-identify as the spouse or partner of the PWD * Must provide some caregiving to a PWD * Must live in the same dwelling as the PWD Exclusion Criteria: * Diagnosis of dementia * Unable to use or does not have access to a computer * Complete deafness or blindness and/or unable to use a telephone * Condition that prevents them from performing caregiving duties or providing physical/emotional support to the PWD * Unable to follow directions * Unable to read or write in English * Participation in prior study involving the EPT

Outcomes

Primary Outcomes

Completion of the EPT six weeks from the baseline visit

This will be measured using de-identified data from the EPT system.

Time frame: Six weeks

Secondary Outcomes

Identification and engagement of a standby caregiver six weeks from the baseline visit

This will be measured using de-identified data from the EPT system.

Time frame: Six weeks

Change in caregiver preparedness from baseline to Month 3

This will be measured using the Caregiver Preparedness Scale (CPS). Responses are rated from 0 to 4. The higher the score, the more prepared the caregiver feels for caregiver; the lower the score, the less prepared the caregiver feels.

Time frame: Three months

Change in caregiver confidence from baseline to Month 3

This will be measured using a Likert scale of caregiver confidence from "completely confident" to "not at all confident". Responses will be grouped into two categories: confident (completely confident, fairly confident, or somewhat confident) or not confident (slightly confident or not at all confident).

Time frame: Three months

Change in caregiving self-efficacy from baseline to Month 3

This will be measured using the Revised Scale for Caregiver Self-Efficacy (RSCSE). Responses are rated from 0 to 100. The higher the score, the more self-efficacious the caregiver feels about caregiving; the lower the score, the less self-efficacious the caregiver feels.

Time frame: Three months

Qualitative data and theme identification from participant experience surveys and EPT-C coaching session recordings

This will be measured using a qualitative descriptive approach and theme identification, based on participant experience surveys and EPT-C coaching session recordings.

Time frame: Three months

Caregivers Preparing for Their Own Health Care Emergency

Overview

Conditions

Interventions

Eligibility

Locations (1)

Outcomes

Primary Outcomes

Secondary Outcomes

Central Contacts