Impact of Providing Nursing Support on Parental Stress Related to Preoperative Care of a Newborn with Hirschsprung's Disease

Assistance Publique Hopitaux De Marseille20 enrolled

Overview

Impact of providing nursing support on parental stress related to preoperative care of a newborn with Hirschsprung's disease

Study Type

INTERVENTIONAL

Allocation

NON_RANDOMIZED

Purpose

SUPPORTIVE_CARE

Masking

SINGLE

Enrollment

Conditions

Hirschsprung Disease

Interventions

Pediatric HAHBEHAVIORAL

Pediatric HAH nursing support for home nursery care provided by parents as part of their child's disease.

Eligibility

Sex: ALL

Medical Language ↔ Plain English

Inclusion Criteria: * Families (one or two parents) with a newborn or infant under 2 months with confirmed or suspected Hirschsprung disease, for whom nursings are effective and performed 1 to 2 times a day while waiting for surgery. * With a possible return home before surgery * With an information leaflet and non-opposition form signed by one or both parent(s) or by the legal representative. Exclusion Criteria: * The absence of daily nursings * Initial ineffectiveness of nursings requiring a digestive stoma * Failure to return home before surgery * Refusal of one or both parent(s) or legal representative(s)

Locations (1)

APHM

Marseille, France

RECRUITING

Outcomes

Primary Outcomes

Questionnary to evaluate stress on parents

Evaluation of the impact on parental stress of nursing support by pediatric HAH in nursery care performed at home by parents as part of their child with Hirschsprung using Perinatal Posttraumatic Stress Disorder Questionnaire (PPQ).

Time frame: From enrollment to the end of treatment at 6 months

Secondary Outcomes

Auto-Questionnary MIB (Mother Infant Bounding) to evaluate the impact of nursing support

Estimate the impact of nursing support by pediatric HAH in nursery care performed at home by parents on the development of the parent-child bond, the burden felt by parents in relation to their child's illness, the length of pre-operative hospital stay (initial and re-hospitalization), the pre-operative complications (recurrent occlusion, enterocolitis) and the home nursing care provided by parents (quality of nursings, pace of nursings, difficulties encountered, child's tolerance)

Time frame: From enrollment to the end of treatment at 6 months

Self-Questionnary Burden inventory to evaluate the nursery training provided

Evaluate nursery training provided by the paramedical team (feedback from parents) : parent training (nursing, understanding illness, understanding illness-related risks) and training aids (sheet, video)

Time frame: From enrollment to the end of treatment at 6 months

Central Contacts

Melanie Boulanger

CONTACT

+33491381245 promotion.interne@ap-hm.fr

Data from ClinicalTrials.gov

This platform is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional.