The goal of the GC-PRO study is to try to make genetic counseling better for people of all backgrounds. We are asking participants to complete two surveys and to allow audio recording of their genetic counseling visit. The purpose of the study is to understand whether trying different ways of doing genetic counseling will lead to better experiences for patients. The research team is also working with partners from the Somali, Latino/Hispanic, Black/African American, and Hmong communities to make sure the research is being done in a way that will benefit underserved communities.
Study Type
INTERVENTIONAL
Allocation
RANDOMIZED
Purpose
HEALTH_SERVICES_RESEARCH
Masking
SINGLE
Enrollment
1,094
all genetic counselors within the same specialty at the same site will cross over from standard of care to the intervention training starting at month 4 to month 15.
all genetic counselors within the same specialty at the same site will cross over from standard of care to the intervention training starting at month 6 to month 15.
all genetic counselors within the same specialty at the same site will cross over from standard of care to the intervention training starting at month 8 to month 15.
all genetic counselors within the same specialty at the same site will cross over from standard of care to the intervention training starting at month 10 to month 15.
all genetic counselors within the same specialty at the same site will cross over from standard of care to the intervention training starting at month 12 to month 15.
all genetic counselors within the same specialty at the same site will cross over from standard of care to the intervention training starting at month 14 to month 15.
University of Minnesota
Minneapolis, Minnesota, United States
effectiveness of a genetic counseling skills training intervention
The exact measure of effectiveness has been omitted to ensure no bias is created and that research integrity is preserved
Time frame: 1 month
patient perception of overall GC quality
Overall perception of quality of the genetic counseling session
Time frame: 1 month
patient-centered communication
An assessment of the patient's experience with their healthcare provider
Time frame: 1 month
patient empowerment
A process through which patients gain control over decisions and actions affecting their health
Time frame: 1 month
patient activation
A patient's ability to manage their own health and take an active role in their care
Time frame: 1 month
patient information needs met / information overload
Assessment of how much information the patient desired and was provided
Time frame: 1 month
patients' perceived trust in GC
Measure of patients' trust in their provider
Time frame: 1 month
working alliance
Relationship between patient and provider
Time frame: 1 month
GC verbal dominance
Measurement of the amount of time the patient, genetic counselor, and other individuals spend talking in the session
Time frame: 1 month
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