Children with inflammatory bowel disease (IBD) including both Crohn's disease (CD) and ulcerative colitis (UC) can be at high risk of developing malnutrition due to the nature of their condition. It is also believed that some children with IBD, in need of nutritional care, are not identified quickly by their healthcare professionals. This may negatively affect their nutrition, disease progression and general well-being. Hence, it has been proposed that nutritional screening tools or scores (NSTs) should be used to promptly identify children needing further dietetic review and input. Although there are a few NSTs for generic use in sick children at hospital admission, NSTs or scores to use for children with IBD are currently missing. In this study, we would like to test the performance of an existing tool that is routinely used for all sick children at hospital admission (The Paediatric Yorkhill Malnutrition Score or PYMS)(5) and test whether PYMS can detect children with IBD who are at risk of malnutrition. If PYMS doesn't work well, we will develop a specific tool for children with IBD (The Paediatric IBD Nutrition Score or PIBD-NUTS).
Study Type
OBSERVATIONAL
Enrollment
2,000
In a pilot implementation study, PYMS will be used on children with IBD attending the outpatient and inpatient hospital clinics
Salzburg University Hospital
Salzburg, Austria
RECRUITINGChildren's Hospital Zagreb
Zagreb, Croatia
RECRUITINGUniversity of Giessen
Giessen, Germany
RECRUITINGErasmus MC university medical centre
Rotterdam, Netherlands
RECRUITINGThe Children's Memorial Health Institute
Warsaw, Poland
RECRUITINGUniversity Hospital Bristol and Weston
Bristol, United Kingdom
RECRUITINGRoyal Hospital for Children and Young People
Edinburgh, United Kingdom
RECRUITINGGreat Ormond Street Hospital
London, United Kingdom
RECRUITINGthe performance of an existing nutritional screening tool (PYMS) in paediatric IBD patients at different international settings.
The primary outcome measure for our study is to evaluate the performance of an existing nutritional screening tool, the Paediatric Yorkhill Malnutrition Score (PYMS), specifically in pediatric IBD patients across various international settings. We aim to assess its diagnostic accuracy by examining sensitivity and specificity.
Time frame: 1 year
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