Peer support is a valuable mode of accompaniment between individuals who are facing or have faced similar challenging life experiences. In this context, a patient advisor (PA) shares their experiential knowledge, derived from living with a disease, to offer emotional, experiential, and informational support to other patients. This PA intervention represents an innovative form of support for oncology patients, potentially addressing their needs more comprehensively throughout the care pathway by integrating psychosocial dimensions into the support approach. The present pilot study aims to investigate the implementation and effectiveness of the peer-to-peer support program "PaRole OncO France" in the oncology setting. The study will focus on: 1. Evaluating clinical and psychosocial parameters 2. Utilizing an in-depth multiple case study approach This research seeks to provide insights into how peer support can enhance the overall care experience for oncology patients, potentially leading to improved patient outcomes and a more holistic approach to cancer care.
Peer support is a valuable mode of accompaniment between individuals who are facing or have faced similar challenging life experiences. In this context, a patient advisor (PA) shares their experiential knowledge, derived from living with a disease, to offer emotional, experiential, and informational support to other patients. This PA intervention represents an innovative form of support for oncology patients, potentially addressing their needs more comprehensively throughout the care pathway by integrating psychosocial dimensions into the support approach. The present pilot study aims to investigate the implementation and effectiveness of the peer-to-peer support program "PaRole OncO France" in the oncology setting. The study will focus on: 1. Evaluating clinical and psychosocial parameters 2. Utilizing an in-depth multiple case study approach This research seeks to provide insights into how peer support can enhance the overall care experience for oncology patients, potentially leading to improved patient outcomes and a more holistic approach to cancer care.
Study Type
INTERVENTIONAL
Allocation
NA
Purpose
SUPPORTIVE_CARE
Masking
NONE
Enrollment
720
Following the development of the peer support program "PaRole OncO France", we are now proceeding with its implementation and evaluation through a pilot study. This study aims to derive both implementation-related and clinically relevant results. Prior to their assignment, all peer helpers undergo a comprehensive training course to ensure they are well-equipped for their role. Patients receive individual peer support during their treatment visits, providing real-time assistance and support within the clinical setting. The study incorporates three key measurement time points: 1. Baseline measurement (before the intervention) 2. After the intervention 3. Follow-up measurement (1months after the first intervention) 4. Follow-up measurement (6 months after the first intervention) At each time points, participants will complete a set of standardized questionnaires. These instruments are designed to capture relevant outcomes and experiences related to the peer support intervention.
Hospices Civils de Lyon
Lyon, France
Hospices Civils de Lyon
Lyon, France
Feasibility of implementation of the Peer Support Program in Oncology
Acceptability of PH intervention by patients, professionals, and PAs Number of PHs integrated per unit Maintenance of PH activity during the study period in each unit Primary outcome measure is multidimensional by design, as the evaluation of a peer support program requires simultaneous analysis of complementary aspects (acceptability, feasibility, fidelity). These elements are inherently interconnected within our methodological framework.
Time frame: 30 months
Evolution of stress levels
Hospital Anxiety and Depression Scale (Min: 0; Max: 42). Higher scores indicate levels of anxiety and depression
Time frame: Baseline
Evolution of stress levels
Hospital Anxiety and Depression Scale ((Min : 0; Max : 42).Higher scores indicate greater levels of anxiety and depression.
Time frame: 6 months
Evolution of quality of life
EORTC QLQ-C30 questionnaire(Min : 0 ; Max : 100).Higher scores indicate better health status and quality of life
Time frame: Baseline
Evolution of quality of life
EORTC QLQ-C30 questionnaire(Min : 0 ; Max : 100).Higher scores indicate better health status and quality of life.
Time frame: 1 month, 6 month
Evolution of patient-perceived care experience
Picker Patient Experience questionnaire(Min : 0 ; Max : 100).Higher scores indicate a better patient experience and greater satisfaction.
Time frame: Baseline
Evolution of patient-perceived care experience
Picker Patient Experience questionnaire(Min : 0 ; Max : 100).Higher scores indicate a better patient experience and greater satisfaction.
Time frame: 1 month
Evolution of patient-perceived care experience
Picker Patient Experience questionnaire(Min : 0 ; Max : 100). Higher scores indicate a better patient experience and greater satisfaction.
Time frame: 6 months
Patient empowerment
CASE-cancer questionnaire(Min :0 ; Max : 100). Higher scores indicate greater self-efficacy in managing cancer.
Time frame: Baseline
Patient empowerment
CASE-cancer questionnaire(Min :0 ; Max : 100). Higher scores indicate greater self-efficacy in managing cancer.
Time frame: 1 month
Patient empowerment
CASE-cancer questionnaire(Min :0 ; Max : 100). Higher scores indicate greater self-efficacy in managing cancer.
Time frame: 6 month
Evolution of relationship between accompanied patients and healthcare professionals
CADICEE questionnaire(Min :0 ; Max : 100). Higher scores indicate a better perception of patient-healthcare partnership
Time frame: Baseline;1 month and 6 month after intervention
Evolution of quality of life of patient advisors
SF-12 questionnaire(Min :0 ; Max : 100)Higher scores indicate better health-related quality of life.
Time frame: Baseline, 1month, 6 month
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