A transition consultation for adult patients with esophageal atresia, involving medical and paramedical stakeholders, was set up at Hôpital Saint-Louis in 2020. The aim of this initiative is to: 1. initiate adult medical, psychological and social follow-up; 2. empower these adults in their future care; 3. establish a personalized follow-up schedule. This project is the first to focus on post-traumatic stress disorder (PTSD) in young adults with esophageal atresia. A 3-year analysis of the somatic and psychosocial variables analyzed will confirm the validity of this initiative, and define its optimal contours for improving these patients' quality of life as adults.
Study Type
OBSERVATIONAL
Enrollment
50
Evaluation of PTSD prevalence, anxiety-depressive state, quality of life, look for a correlation between their clinical history and PTSD. Analysis of the nutritional, gastrointestinal and respiratory status.
Hopital Saint Louis
Paris, France
RECRUITINGPrevalence of Post Traumatic Stress Disorder
Time frame: At day 0
Hospital Anxiety and Depression score
The HAD scale is a self-assessment scale for detecting states of depression and anxiety in the setting of an hospital medical outpatient clinic. HAD scale is a self-administered scale of 14 items which assessed levels of depression and anxiety, divided into 2 subscales of 7 items (Anxiety or HADS-A, Depression or HADS-D). Each item is scored on a scale of 0 to 3. A score is generated for each of the two sub-scales (sum of the 7 items, ranging from 0 to 21). A higher score indicates worse outcome.
Time frame: At day 0
Hospital Anxiety and Depression score
The HAD scale is a self-assessment scale for detecting states of depression and anxiety in the setting of an hospital medical outpatient clinic. HAD scale is a self-administered scale of 14 items which assessed levels of depression and anxiety, divided into 2 subscales of 7 items (Anxiety or HADS-A, Depression or HADS-D). Each item is scored on a scale of 0 to 3. A score is generated for each of the two sub-scales (sum of the 7 items, ranging from 0 to 21). A higher score indicates worse outcome.
Time frame: At 3 years
Quality of life evaluation
EA QOL questionnaire The score includes 4 domains : eating, social relationships, body perception, and health and well-being. The score varies between 0 to 100, the higher score the higher the quality of life.
Time frame: At day 0
Quality of life evaluation
EA QOL questionnaire The score includes 4 domains : eating, social relationships, body perception, and health and well-being. The score varies between 0 to 100, the higher score the higher the quality of life.
Time frame: At 3 years
Eating assessment
EAT-10 is an auto-questionnaireto evaluate dysphagia. There are 10 items, with a result for each varying between 0 (no problem) and 4 (severe problems)
Time frame: At day 0
Eating assessment
EAT-10 is an auto-questionnaireto evaluate dysphagia. There are 10 items, with a result for each varying between 0 (no problem) and 4 (severe problems)
Time frame: At 3 years
Quality of life assessment
It will be assessed by the SF36 scale. The Short Form (36) Health Survey is a 36-item measure if health status. The score obtained varies between 0 and 100. The higher the score the less disability. Ware JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36): I. Conceptual framework and item selection. Med Care 1992;30:473-83.
Time frame: At day 0
Quality of life assessment
It will be assessed by the SF36 scale. The Short Form (36) Health Survey is a 36-item measure if health status. The score obtained varies between 0 and 100. The higher the score the less disability. Ware JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36): I. Conceptual framework and item selection. Med Care 1992;30:473-83.
Time frame: At 3 years
Weight
Time frame: At day 0
Weight
Time frame: At 3 years
Height
Time frame: At day 0
Height
Time frame: At 3 years
Body Mass Index
Time frame: At day 0
Body Mass Index
Time frame: At 3 years
thoracic CT scan
Time frame: At day 0
thoracic CT scan
Time frame: At 3 years
respiratory function test
Time frame: At day 0
respiratory function test
Time frame: At 3 years
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