Question-Order Effect Experiment to Measure HIV Stigma

Massachusetts General Hospital180 enrolled

Overview

Question-order effect experiment to measure HIV-related stigma among people living with HIV (PWH).

HIV-related stigma is a barrier to engagement in HIV prevention and treatment. Given the negative impact of stigma on the HIV continuum of care, accurate assessment of HIV-related stigma among people living with HIV (PWH) in resource-limited settings is paramount. The purpose of this study is to conduct a question order experiment to assess the extent to which the order of presented questions affects measurement of HIV-related stigma.

Study Type

INTERVENTIONAL

Allocation

RANDOMIZED

Purpose

OTHER

Masking

SINGLE

Enrollment

180

Conditions

HIV

Interventions

Survey questionnaire V1OTHER

Each version of the questionnaire includes a different order of statements about which study participants are asked to provide a Yes, No, or It depends response.

Survey questionnaire V2OTHER

Each version of the questionnaire includes a different order of statements about which study participants are asked to provide a Yes, No, or It depends response.

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: \- All HIV-positive (self-reported) adults who consider Nyakabare their primary place of residence and who are capable of providing consent Exclusion Criteria: * Minors younger than 18 years of age, with the exception of emancipated minors * Persons who do not consider Nyakabare Parish their primary place of residence, e.g. persons who happen to be visiting Nyakabare at the time of the survey or who own a home in Nyakabare but spend most of their time outside of the parish * Persons with psychosis, neurological damage, acute intoxication, or other cognitive impairment (all of which are determined informally in the field by non-clinical research staff in consultation with a supervisor) * Persons who are not HIV positive

Locations (1)

Mbarara University of Science and Technology

Mbarara, Uganda

Outcomes

Primary Outcomes

Self-esteem

...do you think less of yourself because of your HIV status? (single item)

Time frame: Baseline (assessed at the time the survey is administered)

Self-respect

...have you felt ashamed because of your HIV status? (single item)

Time frame: Baseline (assessed at the time the survey is administered)

Experiences of harassment due to HV status

* have you lost respect or standing in the community because of your HIV status? * have people talked badly about you because of your HIV status? * have you been verbally insulted, harassed and/or threatened because of your HIV status? * have you been physically assaulted because of your HIV status? * has someone else disclosed your HIV status without your permission? * have you felt that people have not wanted to sit next to you, for example on public transport, at church or in the waiting room, because of your HIV status? (six items)

Time frame: Baseline (assessed at the time the survey is administered)

Data from ClinicalTrials.gov

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