This is a mixed-methods survey study including a 2-phased sequential-explanatory design. This study is to understand the patient journey in conventional therapy for newly diagnosed stage III or IV CC or EC in China, including ①patients' treatment decision making factors and treatment experiences and ② patients' unmet needs during post-treatment surveillance.
This is a mixed-methods survey study including a 2-phased sequential-explanatory design: Phase 1, Qualitative interview will be done first to explore the treatment decision factors, treatment experiences and unmet needs during post treatment surveillance, to provide components and inform the quantitative data collection. Phase 2, quantitative survey to collect data on a larger scale and allow a statistical generation of the qualitative findings.
Study Type
OBSERVATIONAL
Enrollment
780
30 for Qualitative interview and 750 for quantitative survey
Ying Zhou
Hefei, Anhui, China
Shuzhong Yao
Guangzhou, Guangdong, China
Gang Chen
Wuhan, Hubei, China
Dongling Zou
Chongqing, China
Treatment decision making
1. Information seeking in treatment decision 2. Treatment decision making factors 3. Clinical trial awareness
Time frame: 1 day. At the time of the interview.
Initial treatment experiences
1. Influence of treatment on daily life and work 2. Information and education during treatment 3. Coordination of care 4. Overall impression on care received and doctor/nurses' availability
Time frame: 1 day. At the time of the interview.
Unmet needs and gaps from diagnosis to post-treatment surveillance
1. Psychological and emotional needs 2. Social support needs 3. Healthcare needs 4. Gaps during follow-up care
Time frame: 1 day. At the time of the interview.
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