Recent developments in remote monitoring software can provide a proactive means for data transfer for healthcare teams to communicate with families regarding activities like weaning from feeding tubes. Children's Mercy began utilizing a mHealth technology - CHAMP App® - for tube weaning in the Fall of 2023. Research gaps remain in this population, including comparing the experiences of families who could wean with methods available prior to the innovative use of a medical team collaborating with mHealth technology. This will be a single site study with one-time naturalistic, semi-structured parent interviews of children who have attempted tube weaning in their homes with two different models of care (standard ambulatory tube weaning and with the CHAMP App pilot).
Study Type
INTERVENTIONAL
Allocation
NA
Purpose
OTHER
Masking
NONE
Enrollment
15
Qualitative research interview of parents of pediatric patients seen in an interdisciplinary feeding clinic who underwent a tube weaning program
Children's Mercy Hospital
Kansas City, Missouri, United States
Parental Perspective
Explore the parental perspectives of the process of weaning from feeding tubes to all calories by mouth while in the home setting to identify preference for weaning via remote health monitoring.
Time frame: During the Tube weaning attempt, an average of 8 weeks
Communication
Determine differences in communication between parents and care teams during the weaning process.
Time frame: During the Tube weaning attempt, an average of 8 weeks
Stress
Identify how parents perceive the tube feeding process with regards to stress.
Time frame: During the Tube weaning attempt, an average of 8 weeks
Social Determinates of Health
Identify whether social determinates of health impact tube weaning for all families.
Time frame: During the Tube weaning attempt, an average of 8 weeks
Access
Determine if having increased access to healthcare teams during the tube weaning process has an effect on the confidence of parents to complete the wean.
Time frame: During the Tube weaning attempt, an average of 8 weeks
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