The goal of this study is to comprehensively measure ongoing concerns and unmet needs of individuals living with ovarian cancer. To accomplish this, the UNderstanding The experience of Ovarian cancer - Life after Diagnosis (UNTOLD) study will be conducted using a mixed-methods approach. Ovarian cancer survivors will be enrolled to participate in UNTOLD to complete a one-time survey regarding their experiences. Up to 40 survivors will be subsequently identified to complete a follow-up interview. To ensure these sample sizes, along with a representative sample, a combined recruitment strategy will be employed using the California Cancer Registry (population-based) and recruitment through ovarian cancer advocacy groups.
Study Type
OBSERVATIONAL
Enrollment
2,000
Masonic Cancer Center
Minneapolis, Minnesota, United States
Supportive Care Needs
Composite Supportive Care Needs Survey - Short Form (SCNS-SF34) score minimum: 34, maximum: 170; continuous score; presented as mean and standard deviation.
Time frame: Day 1
Quality of Life - Average FACT general total score
FACT-General total score minimum 0, maximum 108; continuous score; presented as mean and standard deviation
Time frame: Day 1
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