The Johns Hopkins Pediatric Radiation Oncology Program is creating a registry that will capture the full 3D radiation dosimetry delivered to its pediatric patients to manage the quality of care provided, as well as to examine the long-term outcomes and toxicity of each patient. The registry will capture baseline clinical data, disease, toxicity, and quality of life outcomes. The goal is to include all pediatric patients undergoing proton therapy and photon therapy to enable future comparisons of treatment outcomes.
Study Type
OBSERVATIONAL
Enrollment
5,000
Sibley Memorial Hospital
Washington D.C., District of Columbia, United States
Johns Hopkins Hospital
Baltimore, Maryland, United States
RECRUITINGOverall Survival
Measured from date of diagnosis until death, obtained from medical record notes
Time frame: Approximately 10 years
Toxicity due to Radiation Therapy as assessed by number of patients with adverse events
The number of patients that experience adverse events, obtained from medical record notes
Time frame: Approximately 10 years
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