Cultural Adaptation of an Educational Tool in Medullary Thyroid Cancer

N/ARecruitingNCT07142005

M.D. Anderson Cancer Center40 enrolled

Overview

To find good information about medullary thyroid cancer that is easy to understand and reliable, so researchers aim to design some new educational materials to help.

Primary Objectives 1. To co-develop a culturally-adapted educational tool for the Latino/Latina MTC population using the previously developed MTCEducate.org as a framework. (Phase 1) 2. To test, refine, and produce a culturally adapted educational prototype and is intended to assess participants' understanding after reviewing the decision aid as part of the iterative testing and refinement process (Phase 2) Secondary Objectives 1. To assess the tool's acceptability post-production among a broader population of Latino(a) MTC participants and caregivers using the Ottawa Acceptability Scale (Phase 3) 2. To disseminate the educational tool to a broader population of Latino(a)s 3. To summarize the clinico-demographics of educational tool users

Study Type

OBSERVATIONAL

Enrollment

Conditions

Medullary Thyroid Cancer (MTC)Cultural Adaptation

Interventions

InterviewsOTHER

* Questionnaires/Survey Measures * Qualitative Instruments

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

Inclusion criteria: * Provision of signed and dated informed consent form * Males and females; Age: ≥18 years old * Identified ethnicity as "Hispanic" or "Latino/Latina" * Ability to read, write, and speak Spanish * Those who are pregnant are eligible to participate * Have or will face this decision, including: a. Participant/survivor - who has medullary thyroid carcinoma, as determined by a clinician or documented in Multi-Institutional Medullary Thyroid Cancer Collaborative Registry; b. Caregiver/family member - of Participant/survivor who has medullary thyroid carcinoma, as nominated by the Participant/survivor Exclusion Criteria: * Those \< age 18 * Ethnic identity as non-Hispanic or non-Latino/a individual * Individuals with cognitive or psychological impairment (e.g., depression, anxiety, severe mental illness as documented in the registry

Locations (1)

MD Anderson Cancer Center

Houston, Texas, United States

RECRUITING

Outcomes

Primary Outcomes

Questionnaires/Survey Measures

Time frame: Through study completion; an average of 1 year

Central Contacts

Elizabeth Grubbs, MD

CONTACT

713-792-0665 eggrubbs@mdanderson.org

Data from ClinicalTrials.gov

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