The purpose of this study is to evaluate a questionnaire called PRO-AYA: Patient-Reported Outcomes for Adolescents and Young Adults.
Study Type
OBSERVATIONAL
Enrollment
120
PRO-AYA , Patient-Reported ECOG PS, EORTC QLQ-C30, Demographic/Clinical Characteristics
Revised Spanish PRO-AYA, Demographic/Clinical Characteristics
Memorial Sloan Kettering Basking Ridge (Consent Only)
Basking Ridge, New Jersey, United States
RECRUITINGMemorial Sloan Kettering Monmouth (Consent Only)
Middletown, New Jersey, United States
RECRUITINGMemorial Sloan Kettering Bergen (Consent Only)
Test-retest reliability
The test-retest reliability will be based on the intraclass correlation (ICC) coefficients between the baseline and follow-up domain scores of PRO-AYA.
Time frame: up to one month
Linguistically validate PRO-AYA or patients who prefer their healthcare be delivered in Spanish. (Cohort 2)
The primary goal of these cognitive interviews is to ensure that the wording and/or phrasing of the instructions, questions and answer choices are appropriate for native Spanish-speakers. The wording and phrasing are a result of direct translation of the English version of the PRO-AYA to a Spanish version.
Time frame: up to a month
This platform is for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare professional.
Montvale, New Jersey, United States
Memorial Sloan Kettering Commack (Consent Only)
Commack, New York, United States
RECRUITINGMemorial Sloan Kettering Westchester (Consent Only)
Harrison, New York, United States
RECRUITINGMemorial Sloan Kettering Cancer Center
New York, New York, United States
RECRUITINGMemorial Sloan Kettering Nassau (Consent Only)
Uniondale, New York, United States
RECRUITING