Reliability of the Scoliosis Caregiver Response and Emotional Scale (SCaRES) Questionnaire

N/ANot Yet RecruitingNCT07276178

Hasan Kalyoncu University23 enrolled

Overview

The aim of this study is to examine the psychometric properties of the Turkish version of the Scoliosis Caregiver Response and Emotional Scale (SCaRES) questionnaire; to evaluate the reliability of the Turkish form and to ensure its usability in clinical and research fields.

dependent on the involvement of families and caregivers. The emotional burden, stress, anxiety, and social limitations experienced by caregivers during the treatment process can indirectly affect both the individual's quality of life and the success of the patient's treatment. Therefore, objectively assessing the emotional and psychosocial impact experienced by caregivers of individuals with scoliosis is crucial for planning appropriate supportive interventions. The Scoliosis Caregiver Response and Emotional Scale (SCaRES), developed for this purpose, is a specific measurement tool that assesses emotional and behavioral responses to the treatment process in caregivers of individuals with scoliosis. Validity and reliability studies are required for the scale's use in different cultures and languages. Cultural differences, linguistic shifts, and healthcare system dynamics limit the scale's direct translation. Therefore, developing a Turkish version of the SCaRES is crucial for validly and reliably assessing the psychosocial burden experienced by caregivers in Turkish society. The aim of this study was to examine the psychometric properties of the Turkish version of the Scoliosis Caregiver Response and Emotional Scale (SCaRES) and to assess its reliability and ensure its usability in clinical and research settings.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Scoliosis Idiopathic Scoliosis Idiopathic Adolescent Caregiver Anxiety

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: * Individuals who are an adult (parent or primary caregiver) responsible for the care of an individual diagnosed with scoliosis between the ages of 10 and 18. * Individuals who are able to read and understand Turkish. * Individuals who are actively involved in the child's treatment process (e.g., use of a brace, exercise program, follow-up appointments). * Individuals who volunteer to participate in the study. Exclusion Criteria: * Participants whose children have a history of other comorbidities (neurological, etc.), * Children whose children have a history of spinal surgery, * Individuals who do not have an active role in the care process (e.g., parents who only provide financial support), * Caregivers with intellectual disabilities, serious psychiatric diagnoses, or cognitive impairments that limit communication, * Participants with incomplete or invalid survey forms.

Locations (1)

Hasan Kalyoncu University

Gaziantep, Gaziantep, Turkey (Türkiye)

Outcomes

Primary Outcomes

Scoliosis Caregiver Affect and Emotional Questionnaire Turkish Version

The Scoliosis Caregiver Response and Emotional Scale (SCaRES) is a specific scale developed to measure the emotional and behavioral responses of parents or primary caregivers of children or adolescents with scoliosis to the treatment process. The scale assesses aspects such as stress, anxiety, social limitations, and psychosocial burden experienced during the caregiving process. The SCaRES scale consists of 18 items. Each item is scored on a Likert-type scale of 1- Never, 2- Rarely, 3- Often, and 4- Always. The total scale score indicates the caregiver's level of impact on the treatment process. A higher score indicates a greater level of emotional and behavioral impact on the caregiver.

Time frame: through of the study, average 6 months

Central Contacts

Tuğba GÖNEN, Asisst. Prof. Dr.

CONTACT

505 090 58 46 tugba.badat@hku.edu.tr

Data from ClinicalTrials.gov

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