Investigating Management, Perspectives and Attitudes Towards Care in Takayasu Arteritis

University of Edinburgh50 enrolled

Overview

This study aims to understand the experiences of patients with Takayasu arteritis (TAK) and how physicians manage the condition. To achieve this, two separate questionnaires will be conducted: one for patients and one for physicians.

This study aims to investigate the experiences and perceptions of patients with Takayasu arteritis regarding their disease, as well as the perspectives of physicians regarding the management and treatment of these patients. Patients with TAK will be invited to complete an anonymous online (Online Surveys) questionnaire, which will take approximately 25 minutes and will consist of multiple-choice and short-answer questions. The questionnaire will ask about their experience with the condition, symptoms, treatments they have received, and any concerns or priorities they have regarding their care. Physicians who treat TAK will also be invited to complete a separate online questionnaire, taking around 15 minutes and also consisting of multiple-choice and short-answer questions. This will explore how they diagnose and manage TAK, their choice of treatments, and any challenges they face in treating the condition

Study Type

OBSERVATIONAL

Enrollment

Conditions

Takayasu Arteritis Takayasu Arteritis (TAK)

Interventions

QuestionnaireOTHER

An online annoymous questionnaire consisting of short-answer and multiple-choice questions

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: For the patient questionnaire: * Age ≥ 18 years * A formal diagnosis of TAK For the physician questionnaire • A physician involved in the management/decision-making for patients diagnosed with TAK Exclusion Criteria: For the patient questionnaire: * Age \< 18 years * Lack of a formal diagnosis of TAK * Patients without mental capacity or willingness to provide informed consent * Not UK based For the physician questionnaire * Not involved in the management/ decision making for patients diagnosed with TAK * Not willing to take part * Not UK based

Locations (1)

University of Edinburgh

Edinburgh, United Kingdom

RECRUITING

Outcomes

Primary Outcomes

Patient Perspective

To understand the lived experiences of individuals with TAK, including their symptoms, health status post-diagnosis, treatment priorities, and concerns. The questionnaire covers the following topics: * Basic background information * Living with Takayasu arteritis * Changes to health since diagnosis * Physical activity and exercise habits- measured by the International Physical Activity Questionnaire (IPAQ) * Smoking history * Mental well-being- measured by the EQ-5D instrument * Nutrition and diet * Personal views and priorities on management

Time frame: Day 1

Physician Perspective

To evaluate current clinical management strategies for TAK, identify treatment priorities, and highlight areas of unmet need in clinical practice. The physician questionnaire covers the following topics: * Clinical background and experience with TAK patients * Diagnostic and treatment strategies for TAK * Consideration of cardiovascular disease risk in TAK management * Physician priorities and unmet needs of management

Time frame: Day 1

Central Contacts

Alexandra Armstrong

CONTACT

+447445695898 A.Armstrong-9@sms.ed.ac.uk

Data from ClinicalTrials.gov

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