Palliative Care for People With HF

Indiana University20 enrolled

Overview

Imagine having heart failure, a condition where the heart struggles to pump blood, making daily life hard. People with heart failure often don't feel well and end up going to the hospital a lot. Many of these people could feel better with extra help, but there aren't many programs that offer support beyond usual heart failure treatments. That's where the ADAPT program comes in, which stands for "Advancing Symptom Alleviation with Palliative Treatment." In this program, nurses and social workers call people weekly, helping them manage their toughest symptoms, offering tools to cope with heart failure, and keeping the patients' current doctors involved. We tested this program in a research study with heart failure patients and found that it improved their quality of life and lowered depression, anxiety, and heart failure symptoms. We now want to see if the ADAPT program will work in the community, outside of a research setting, so that more people could benefit from it. Specifically, we want to know: can the ADAPT program work well in new places? Will patients and their families find it helpful? Most importantly, can it help improve the lives of people with heart failure in these new settings? To answer these questions, I'll team up with healthcare providers to 1) ask how we can adjust the ADAPT program to work well in various settings (e.g. primary care, heart failure clinic) and 2) use this information to create simple materials and trainings to help them easily provide ADAPT. This will prepare us for the next phase of this project to test out the new ADAPT program.

Study Type

OBSERVATIONAL

Enrollment

Conditions

Congestive Heart Failure Congestive Heart Failure(CHF)Congestive Heart Failure (CHF)

Interventions

ADAPTOTHER

Concurrent mixed methods design with rapid qualitative analysis of data from semi-structured interviews, structured clinic observations, and descriptive analysis of surveys. Participants will include clinical providers (e.g. physicians, advanced practice providers, nurses, social workers), staff, and leadership at IU Health. As opposed to traditional qualitative methods, rapid qualitative approaches are commonly used in implementation-focused research to guide real-time implementation processes.13 Findings will identify potential clinical partnership site(s) and inform selection and tailoring of strategies to implement ADAPT in a partner clinical site in the next stage of this project.

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: Outpatient clinician or staff member with at least 6 months of experience caring for patients with HF (e.g. physician, physician assistant, nurse practitioner, registered nurse, social worker, psychologist, medical assistant) or healthcare leadership personnel (e.g. Chief Nursing Officer, Clinic Medical Director etc.) 18 years or older Exclusion Criteria: \-

Outcomes

Primary Outcomes

Qualitative Themes

Qualitative themes from interviews and clinic observations and descriptive summary statistics (e.g. means, percentages) of barriers and facilitators from pCAT and PCSI surveys.

Time frame: Single time point interview and survey