A Qualitative Study Investigating the Lived Experiences and Impact of Reproductive Issues in Adults With Primary Ciliary Dyskinesia

University Hospital Southampton NHS Foundation Trust30 enrolled

Overview

Study involving undertaking research interviews with adults who have primary ciliary dyskinesia in the UK about their views and experiences of fertility, pregnancy and parenthood

Study Type

OBSERVATIONAL

Enrollment

Conditions

Primary Ciliary Dyskinesia (PCD)

Interventions

Interview onlyOTHER

No intervention

Eligibility

Sex: ALLMin age: 18 Years

Medical Language ↔ Plain English

Inclusion Criteria: * Lives in United Kingdom * 'likely' or 'confirmed' diagnosis of PCD * able and willing to sign the consent form Exclusion Criteria: * unwilling to participate in the study * not meeting inclusion criteria

Locations (1)

University Hospitals Southampton NHS Trust

Southampton, United Kingdom

RECRUITING

Outcomes

Primary Outcomes

Qualitative description of views and experiences of participants

Explored during study interview

Time frame: Explored during study interview (day 1)

Central Contacts

Lydia Newman

CONTACT

02381206033 Lydia.newman@soton.ac.uk

Data from ClinicalTrials.gov

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