The study focuses on rehabilitation nursing care for adults diagnosed with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a home setting. The objective is to evaluate the effects of an individualised rehabilitation programme, which aims to empower participants to manage their energy effectively, observing the impacts on functionality and fatigue.
During the study, we collected sociodemographic data, information about the clinical evolution, patient perception of the disease. Instruments were applied to assess quality of life, functionality, and fatigue levels. This will allow to understand how to improve rehabilitation nursing care.
Study Type
INTERVENTIONAL
Allocation
NA
Purpose
SUPPORTIVE_CARE
Masking
NONE
Enrollment
13
An educational program focused on energy management and developed by the United Kingdom's NICE. The overall aim of the intervention was the empowerment of patients with self-management strategies that could help them to maximize their autonomy, independence and daily activities without exceeding their perceived energy reservoir.
Escola Superior de Saúde Norte da Cruz Vermelha Portuguesa, Portugal.
Oliveira de Azeméis, Aveiro District, Portugal
Functional Assessment
Short Form Health Survey: SF 36 v2 (physical dimension)
Time frame: Assessment at two time points: M0 - before the start of the intervention; M1 - 12 weeks after the end of the intervention.
Quality of Life Measure
Quality-of-life measure: EuroQoL 5D-5L
Time frame: Assessment at two time points: M0 - before the start of the intervention; M1 - 12 weeks after the end of the intervention.
Fatigue Assessment
Application of the Chalder Fatigue Scale
Time frame: Assessment at two time points: M0 - before the start of the intervention; M1 - 12 weeks after the end of the intervention.
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