Family caregivers of people with dementia have to decide between tube feeding and hand feeding when persistent eating problems arise. This decision can be difficult for Chinese American dementia caregivers, due to the interplay of culture, potential absence of a patient's advance directive, poor understanding of dementia, and lack of knowledge on the risks and benefits of tube feeding. In this polit study, the principal investigator examines whether a culturally adapted decision aid intervention regarding feeding options named "Chinese version of Making Choices Feeding Options for Patients with Dementia Decision Aid" (CMCFODA) will improve Chinese American caregivers' decision-making about feeding options in patients with moderate or advanced dementia. The proposed study advances the field by providing critical evidence to inform the development and implementation of culturally adapted decision support interventions in end-of-life dementia care.
Study Type
INTERVENTIONAL
Allocation
RANDOMIZED
Purpose
SUPPORTIVE_CARE
Masking
NONE
Enrollment
60
Participants in the treatment group will receive the CMCFODA via zoom meeting or another secure video conferencing platform and an individualized decision coaching.
School of Nursing at UT Austin
Austin, Texas, United States
Decision conflict
SURE test for decisional conflict (0-4)
Time frame: Baseline; One-Month Follow-Up; Three-Month Follow-Up
Knowledge of feeding options and dementia
Questions to assess knowledge about feeding options and dementia
Time frame: Baseline; One-Month Follow-Up; Three-Month Follow-Up
Expectations of tube feeding
Questions about understanding differing expectations regarding feeding tube use
Time frame: Baseline; One-Month Follow-Up; Three-Month Follow-Up
Frequency of communication with other family members and healthcare providers
Questions to understand caregiver involvement, support, and information flow
Time frame: Baseline; One-Month Follow-Up; Three-Month Follow-Up
Preference of feeding option
Careful hand feeding, tube feeding, or unsure
Time frame: Baseline; One-Month Follow-Up; Three-Month Follow-Up
Preparation for decision-making scale (treatment group only)
Questions to assess the effect of the intervention by preparing for feeding option decision-making
Time frame: One-Month Follow-Up; Three-Month Follow-Up
The Feasibility of the CMCFODA study as measured by recruitment rates and the proportion of participants that decline participation.
The feasibility of the CMCFODA study will be measured by the proportion of eligible participants who decline to participate among those who were screened into the study.
Time frame: Enrolment
The Feasibility of the CMCFODA study as measured by participant retention, as indicated by the number of participants lost to follow-up.
Participant retention, as an aspect of feasibility, will be measured by the recorded number of participants number lost to follow-up.
Time frame: Enrollment to 3-month Follow-Up
Acceptability of the decision aid and decision coaching (only for the treatment group)
We will use developed questions to measure the acceptability of this intervention
Time frame: One month follow-up
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