This project aims to improve knowledge regarding Alzheimer's dementia and related dementias (ADRD) among older adults and their caregivers in Vietnam and promote the early diagnosis of ADRD using a digital storytelling intervention.
This study will develop and test a Digital Storytelling intervention to improve older adults' and caregivers' knowledge of ADRD and to facilitate early diagnosis in rural areas of Vietnam. The Digital Storytelling Intervention includes interactive multimedia modules for motivating behavior change and improving knowledge and attitudes toward ADRD among older adults and their caregivers through the power and voices of patients with mild to moderate ADRD, older persons with cognitive concerns, and their caregivers. Mobile Health technology (Computerized Intervention Authoring System - CIAS) will be used to deliver the intervention.
Study Type
INTERVENTIONAL
Allocation
RANDOMIZED
Purpose
DIAGNOSTIC
Masking
SINGLE
Enrollment
100
Participants will receive a digital storytelling intervention featuring narratives from older adults with mild to moderate Alzheimer's disease and related dementias (ADRD) and their caregivers who have successfully managed the condition. The stories highlight the benefits of early ADRD diagnosis and strategies for managing diagnostic and care-related challenges. The intervention will be delivered at baseline and biweekly thereafter for three months via CIAS, with didactic "Learn More" modules provided following the stories.
Participants will receive basic information about Alzheimer's disease and related dementias (ADRD), issued by the Vietnam Ministry of Health (usual care), at baseline and at Month 3.
Vietnam National Geriatric Hospital
Hanoi, Vietnam, Vietnam
Intervention Feasibility: Participant Recruitment and Retention
Feasibility will be assessed using recruitment and retention records, including the number of participants approached, reasons for ineligibility or refusal, and study completion rates.
Time frame: Baseline, Month 3, Month 6
Intervention Engagement: Interaction Records from CIAS
Engagement will be assessed using the number of videos watched.
Time frame: Month 3, Month 6
Intervention Engagement: Exit Interview
Information on participants' experiences with the intervention will be collected through exit interviews.
Time frame: Month 6
Intervention Acceptability: System Usability Scale (SUS)
SUS is a 10-item, 5-point Likert scale for subjective assessment of usability. The SUS scores range from 0 to 100. A score of \> 50 indicates that the technology-based interventions are acceptable.
Time frame: Month 3, Month 6
ADRD Knowledge: Dementia Knowledge Assessment Scale (DKAS)
DKAS is a 25-item scale that evaluates dementia knowledge. Total scores range from 0 to 50, with higher scores indicating greater knowledge.
Time frame: Baseline, Month 3, Month 6
Attitudes: Dementia Attitude Scale (DAS)
DAS is a 20-item, 7-point Likert scale assessing attitudes toward dementia and people living with dementia. Items are summed, with selected items reverse-coded as appropriate, to calculate a total score (range: 20-140). Higher scores indicate more positive attitudes.
Time frame: Baseline, Month 3, Month 6
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ADRD Screening/Diagnosis
Rates of ADRD screening and diagnosis will be obtained via interviews and through review of participants' medical records by trained study staff. The diagnosis will be reviewed and confirmed by the study co-investigators (physicians).
Time frame: Month 3, Month 6
Quality of Life: SF-12
The SF-12 is a 12-item scale that assesses health-related quality of life across physical and mental well-being domains. Scores can range from 0 to 100, with higher scores indicating better quality of life.
Time frame: Baseline, Month 3, Month 6
Self-Care: The Self-Care of Chronic Illness Inventory (SC-CII)
SC-CII is a 29-item scale assessing self-care behaviors across three domains: self-care maintenance, self-care monitoring, and self-care management. Scores range from 0 to 100, with higher scores indicating better self-care.
Time frame: Baseline, Month 3, Month 6