STEPS-LT is an extension of the System Interventions to Achieve Early and Equitable Transplants (STEPS) study. STEPS-LT will follow participants that previously completed the STEPS study to evaluate sustained behavioral activation and transplant-related milestones among participants.
STEPS-LT extends the original STEPS study for long-term follow-up. Participants will be followed for an additional 36 months to evaluate sustained behavioral activation and transplant-related milestones among participants originally enrolled in STEPS. STEPS-LT maintains the original STEPS study cohort and will collect additional outcomes data through questionnaires, electronic health records, and the Scientific Registry of Transplant Recipients. This extended follow-up will assess participants' engagement in transplant readiness behaviors and transplant barriers they encounter over time.
Study Type
OBSERVATIONAL
Enrollment
793
Wake Forest University Health Sciences
Winston-Salem, North Carolina, United States
Patient Reported Physician Discussions
number of times patient talked to physician regarding kidney transplant measured by patient report in questionnaire
Time frame: month 6, months 12, months 18, month 24, month 30, month 36
Patient Reported Family Discussions
number of times patient talked to family regarding kidney transplant measured by patient reported in questionnaire
Time frame: month 6, months 12, months 18, month 24, month 30, month 36
Patient Reported Initiation of Transplant Evaluation
number of patients that said "yes" to the initiation of transplant evaluation measured by patient report in questionnaire
Time frame: month 6, months 12, months 18, month 24, month 30, month 36
Patient Reported Identification of a Living Donor
Number of patients that said "yes" to the identification of a living donor measured by patient report in questionnaire
Time frame: month 6, months 12, months 18, month 24, month 30, month 36
Patient Reported Completion of Transplant Evaluation
Number of patients that said "yes" to the completion of transplant evaluation measured by patient report in questionnaire
Time frame: month 6, months 12, months 18, month 24, month 30, month 36
Health System Reported Live Donor Inquires to Transplant Center
the number of participants that made an inquiry to the transplant center related to donors as reported in health system electronic health record or questionnaires
Time frame: month 6, months 12, months 18, month 24, month 30, month 36
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Health System Reported Receipt of Live Donor Kidney Transplant
The number of participants that completed their live kidney donor transplant as reported by the electronic health record or questionnaire
Time frame: month 6, months 12, months 18, month 24, month 30, month 36
Health System Reported Receipt of Deceased Donor Kidney Transplant
The number of participants that completed their deceased kidney donor transplant as reported by the electronic health record or questionnaire
Time frame: month 6, months 12, months 18, month 24, month 30, month 36
Health System Reported Placement on Deceased Kidney Donor Waitlist
The number of participants that have been placed on the deceased kidney donor waitlist as reported in the electronic health record or United Network of Organ Sharing
Time frame: month 6, months 12, months 18, month 24, month 30, month 36
Health System Reported Completion of Transplant Evaluation
Number of participants that said "yes" to completion of transplant evaluation as reported in health system electronic health record and administrative reports
Time frame: month 6, months 12, months 18, month 24, month 30, month 36
Health System Reported Initiation of Transplant Evaluation
Number of patients that said "yes" to the initiation of transplant evaluation as reported in health system electronic health record and administrative reports
Time frame: month 6, months 12, months 18, month 24, month 30, month 36
Patient Reported Kidney Transplant Knowledge
Number of questions patients correctly answer measured by patient report in questionnaire
Time frame: month 6, months 12, months 18, month 24, month 30, month 36